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Connecting newborns and families to community resources and support. The program ensures timely risk assessment for all Rhode Island infants to address developmental challenges early on. Data collection includes various factors like immunizations, care providers, and parental characteristics. The gathered information aids in providing support, tracking health indicators, and promoting public health services. The program integrates data into the electronic birth certificate system for seamless coordination. First Connections, a home-visiting model, offers comprehensive assessments and connects families with necessary health and social services to enhance child development and family well-being.
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NEWBORN DEVELOPMENT RISK ASSESSMENT: Connecting newborns and their families to community resources and supports September 2017
Program Goals and Objectives • To ensure that all infants born in Rhode Island obtain a Newborn Risk Assessment • Newborn Risk Assessment is coordinated, accurate and timely
Who receives a developmental risk assessment? • All infants born in Rhode Island maternity hospitals • Infants transferred to RI maternity hospitals if family resides in RI
Why do a developmental risk assessment? • IDEA (Individuals with Disabilities Act) “Child Find” requirement for states to seek out children at risk for developmental challenges and intervene early • The Rhode Island system is:1) Developmental risk assessment followed by family support home visits (First Connections:4/1/2009) 2) Screening of actual development, resources, supports and home environment 3) Referral to Early Intervention /other community resources
What data is collected? It is not just developmental risk anymore • Known developmental risk factors • Newborn immunizations and hepatitis b status for tracking and follow-up • Alternate contact information to reach families in emergencies such as life threatening conditions identified through newborn screening • Community primary care provider for follow-up and care coordination • Breast feeding data
What data is collected? cont.’d • Language spoken in the home for written and oral communication with families • Insurance status • Demographic information used in communication, reporting, data analysis • Prenatal care information
Child Characteristics- APGAR Score- Gestational age- Growth parameters- Hearing screen - HEP B risk- Intensive care Parental Characteristics- DCYF - Chronic illness- Developmental disabilities- Mental health history- Inadequate prenatal care- Substance use Developmental Risk Factors Parental Demographics- Caregiver’s education- Caregiver’s marital status- Maternal age- # children living in homeEstablished Conditions- Chromosomal anomalies- Developmental disability- Genetic disorder- Inborn error in metabolism- Infectious disease- Sensory disorder- Toxic exposure
Where does the data come from? • Mom’s medical record • Delivery sheet • Birth certificate worksheet • Hospital data systems • Hospital staff • Child’s medical record if indicated
How is the data used? • Referral to First Connections Home Visiting (**note: referrals at birth are not made to Early Intervention, that is the responsibility of the maternity hospital) • Supports assurance, tracking and follow-up for newborn blood spot, hearing and hepatitis b/c programs • Policy development for newborn and early childhood programs • Analyzing key maternal and child health indicators and trends • Opens records in KIDSNET (integrated child health information system) to assure and promote public health preventive services throughout childhood
KIDSNET Data Flow • Data collection is integrated into the electronic birth certificate • Data gets downloaded to KIDSNET • KIDSNET generates electronic home visit referrals based on residence VR2000 Developmental Risk Assessment Home Visit Referrals Birth Certificate
First Connections First Connections Rhode Island’s Infant and Toddler Home Visiting Program
Goals of the First Connections Home Visiting Program • The overall goal of First Connections, is to improve the health and development of young children and their families through a model of home based, outreach, screening, assessment, referral and follow-up . • First Connections is a low intensity, short term referral and linkage home visiting model.
First Connections The First Connections home visiting model is multidisciplinary. The team providing the services includes a maternal child health nurse,a social worker and a community health worker.
First Connections The First Connections home visiting team provides a comprehensive assessment of mothers,infants and their families,health education and risk reduction counseling;connections with appropriate health care and human services and resources as indicated by screening and assessment and family choice
First Connections The Health Assessment includes at a minimum: • Infant Care • Maternal Post-Partum Care • Access to primary health care including medical and mental health services • Breastfeeding, WIC,and other nutritional support • Economic support • Basic Needs • Education and Job Training • Referral to Early Intervention or Evidence Based Home Visiting Programs(EHS, HFA and PAT) • Specialized programs such as substance abuse treatment, interpersonal violence, and depression
First Connections Additional support includes : • Developmental Screening and Assessment • Health Education and Coaching, and Risk Reduction • Connections with appropriate health care and human services and resources as indicated by family choice, screening and assessment, and “place”.
Kristine Campagna, M.Ed. Chief, Office of Family Home Visiting and Newborn Screening 401-222-5927 kristine.campagna@health.ri.gov