Presentation Outline

1. The Southeast Florida Cancer Control Collaborative: How Organizations Work together for Mutual Benefit and Public ServiceDorothy Parker, MHS, UM Sylvester Comprehensive Cancer CenterPhil Fusca, MSW, Aventura Comprehensive Cancer CenterVanessa Vicente, Leukemia & Lymphoma Society

2. Presentation Outline • Social Work Principles & Historical Perspectives • Phil Fusca • Background on the SFCCC & the Florida Cancer Plan • Dorothy Parker • Function & Structure of SFCCC • Vanessa Vicente • Dorothy Parker

3. Social Work Principles Phil Fusca, MSW Cancer Care Navigator Aventura Comprehensive Cancer Center Aventura Medical Center SFCCC Co-Chair

4. In 1960 the NASW adopted its code of ethics and adopted this preamble in 1967: “Social Work is based on humanitarian, democratic ideals. Professional social workers are dedicated to service for the welfare of mankind…to the marshaling of community resources to promote the well-being of all without discrimination.”

5. In 1979 NASW added “A Summary of Principles” to its Code of Ethics that includes… I. C. Service. The social worker should regard as primary the service obligation of the social work profession. VI.P. Social Worker’s Ethical Responsibility to Society Promoting the General Welfare. The social worker should promote the general welfare of society.

6. According to the NASW, social work is the professional activity of helping individuals, groups, or communities enhance their capacity for social functioning and creating societal conditions favorable to this goal.

7. Social work practice consists of the professional application of social work values, principles, and techniques to one or more of the following ends: • Helping people obtain tangible services • Counseling and psychotherapy with individuals, families, and groups • Helping communities or groups provide social and health services • Participating in relevant legislative processes Social Work: Issues and Opportunities in a Challenging Profession by Diana M. DiNitto and C. Aaron McNeece, 1990

8. According to DiNitto and McNeece, who cite an early curriculum study of social work education, social work practice can be viewed as having three primary functions: • Restoration of impaired capacity • Provision of individual and social resources • Prevention of social dysfunction DiNitto and McNeece (1990)

9. Historical Roots Altruistic values are exemplified in every organized society since ancient history possibly contributing to the success or survival of the society. DiNitto and McNeece (1990)

10. Religious beliefs support this altruism since ancient Egyptian and Mesopotamian times. Food was provided to the needy through centralized planning systems and mandated by religious law. DiNitto and McNeece (1990)

11. The early Chinese and Christians also embraced these traditions and values which can be seen in their common expressions and religious texts. • Common greeting in China, instead of “good morning” is “Have you eaten yet?” • Gospel of Luke: “Blessed are you poor…” leading many early Christians to sell their possessions and distributing the proceeds to “all as they had need.” DiNitto and McNeece (1990)

12. Social work and human history go together. Social work was always in human societies although it began to be a defined pursuit and profession in the 19th century. This definition was in response to societal problems that resulted from the Industrial Revolution and an increased interest in applying scientific theory to various aspects of study. Eventually an increasing number of educational institutions began to offer social work programs. DiNitto and McNeece (1990)

13. The settlement movement was a liberal reformist social movement peaking around the 1920s in England and the US, with a goal of getting the rich and poor in society to live more closely together in an interdependent community. • In the US, the two largest and most influential settlement houses were Chicago’s Hull House (founded by Jane Addams in 1889) and the Henry Street Settlement in New York (founded by Lillian Wald in 1893). DiNitto and McNeece (1990)

14. The Community and the Social Worker A community exists when a group of people form a social unit based on common location, interest, identification, culture, and/or activities. The Community Social Worker by Philip Fellin, 1995

15. A competent community may be defined as: • one in which the various component parts of the community are able to collaborate effectively in identifying the problems and needs of the community; • can achieve a working consensus on goals and priorities; • can agree on ways and means to implement the agreed-upon goals; • can collaborate effectively in the required actions. Fellin (1995)

16. From an ecological perspective, a competent community enjoys a productive balance between its inhabitants and their environment, allowing for change in an orderly, nondestructive manner and providing essential daily sustenance requirements for its citizens. Fellin (1995)

17. The social systems perspective… involves social institutions relating to one another within a community system, providing social functions of production/distribution/consumption, socialization, social control, social participation, and mutual support for individuals and for the community as a whole. Fellin (1995)

18. According to Fellin, 1995, there appears to be little consensus within the social work profession as to the proper balance between micro and macro practice in serving individuals, groups, organizations, communities, or society. There is, however, general recognition that knowledge about organizations and communities as a part of the social environment is essential for both macro and micro levels of professional practice. This can be viewed in the context of the overall mission of social work. Fellin (1995)

19. One of the essential characteristics of a competent community is that it acts effectively for the benefit of its members. Competent communities provide care for those who cannot care for themselves. Fellin (1995)

20. One common but unusual social unit in local American communities is the voluntary association whereby members are involved in such activities as mutual aid, socialization, and social participation.

21. When Alexis de Toqueville visited America from France in the 1830s, he observed the American propensity to form and join associations which is apparently unique as compared to European social organization. He marveled, “The Americans of all ages, all conditions and all dispositions constantly form associations.”

22. One of the significant functions of voluntary associations involves the linkage the groups provide for individuals in relation to large bureaucratic organizations and for communities or organizations to helping networks. They function to assist and relieve the individual or organizational burden and serve as mechanisms for social participation.

23. This can be seen in the functions of the SFCCC – serving to effect community change as well as in increasing, accessing and distributing resources to high risk populations. In the SFCCC, the whole is greater than the sum of the parts.

24. Background: SFCCC and the Florida Cancer Plan Dorothy Parker, MHS Manager, Disparities & Community Outreach Core University of Miami Sylvester Comprehensive Cancer Center SFCCC Administrator

25. State Cancer Plan Timeline 1980First Florida Cancer Plan: 1980 Approved by the Florida Cancer Control and Research Advisory Council (a.k.a. CCRAB) Staffed by the DOH (formerly HRS) from 1980 – 1992 Moved to H. Lee Moffitt Cancer Center in 1992 2000UM received CDC $ for the Florida Comprehensive Cancer Control Initiative Established 4 regional collaboratives & 4 regional plans 2002DOH received CDC $ for Comprehensive Cancer Control Developed new cancer plan with input from regional collaboratives 2004Florida Cancer Plan Council created to help develop and implement the state cancer plan DOH offered $ to regional collaboratives 2003-2006 Florida Cancer Plan (see next slide) 2008New state cancer plan developed (to be printed by the end of 2009)

26. http://www.doh.state.fl.us/family/cancer/

27. 2009 State Cancer Plan Goals • A coordinated approach among public and private cancer control stakeholders to implement cancer activities statewide. • Floridians practice the healthy behaviors associated with prevention of cancer or to reduce risk. • Floridians have access to appropriate health information and effective health services for the timely detection, diagnosis, and treatment of cancer. • Floridians affected by cancer are aware of and have access to quality, appropriate services for quality of life, palliative care, and survivorship.

28. Indian River Okeechobee St. Lucie Martin Palm Beach Broward Miami Dade Monroe Southeast Florida Region Other regional collaboratives being re-established

29. Function & Structure of SFCCC Vanessa Vicente Community Outreach Manager Leukemia & Lymphoma Society, Southern Florida Chapter SFCCC Co-Chair

30. How SFCCC Functions • Holds quarterly meetings • Rotate between sites in Miami-Dade, Broward & Palm Beach Counties • Includes Partnership Showcases, Workgroup sessions and informational presentations • Web site and ListServ (sponsored by Univ. of Miami) • Bylaws - established in 2004 • Co-chairs elected (2 year terms) • Workgroups to address state cancer plan goals • Sponsor education programs – professional and community • Funding from DOH Comprehensive Cancer Control (CDC $) available to sponsor and promote educational program and the Collaborative

31. SFCCC Workgroups • Palliative Care & Quality of Life • Co-Leaders: Gail Brown, Xiomara Umana-Alvarez, Sunsy Garcia • Cancer Disparities • Co-Leaders: Christine Austin-Valere, Janice Fulmore-Tigner • Cancer Risk Reduction • Leaders: Eddie Dutton • Synergy • Co-Leaders: Carthy Thomas, Anjul Baid

32. Palliative Care Workgroup Activities

33. Educational Workshops • Palliative Care Workshop Nov 2005, North Broward Medical Center • Caregiver Workshop (for professional caregivers) Dec 2006, North Broward Medical Center • Cancer Caregivers (for family caregivers) April 2008, Jungle Island, Miami • Cancer Survivors Workshop April 2009, Holy Cross Hospital, Ft Lauderdale

34. Cancer Survivors – Do You Wonder “What’s Next For My Life?”™ Workshop presented by the Southeast Florida Cancer Control Collaborative Saturday April 18, 2009  Holy Cross Hospital, Ft. Lauderdale Program Goal: To help cancer survivors learn to embrace the future, set priorities, and create a healthy life.

35. Cancer Caregivers Workshop Jungle Island, Miami April 5, 2008 The Healing Power of Humor, Susan Zak, BS, LFD, Hospice by the Sea Low Fat High Fiber & Exercise to Maintain a Healthy Weight, Valerie Riva, MS, RD, LD, Lynn Cancer Institute Food Label Confusion? Understanding Labels for Smart Shopping, Debi Krieman, MPH, RD, LDN , Memorial Cancer Institute Reiki: How to Maximize your Energy as a Cancer Caregiver, Nelly Thomas, Energy Practitioner, LMT, The Healing Room, Inc. The Lebed Method: Focus on Healing through Movement and Dance, Cathee Connor, CLM, Founder & President, Dance of Life, Inc. Other Activities: Workshops and demonstrations on nutrition, exercise, chair massage, relaxation techniques, Music, Educational material and community resource exhibits, Kids Caring Corner, hosted by Gilda’s Club Noogieland

36. Photos from Jungle Island Cancer Caregivers Workshop

37. Disparities Workgroup Activities

38. Dialogue on Health across CulturesA Workshop on Cultural Competency in Cancer Care for South FloridaSeptember 20, 2008Nova Southeastern University Program goals: • To gain a better understanding of the diversity of cultural values, attitudes and beliefs that impact health behaviors and the use of health care services in South Florida. • To educate health care providers about the importance of a culturally sensitive environment, materials and resources. • To increase awareness of race, ethnic and gender disparities, as well as language and cultural barriers in accessing cancer care. Learning Objectives: • To understand best practices for culturally sensitive cancer prevention and treatment interventions for various groups. • To identify practical skills for providing culturally competent cancer care.

39. Risk Reduction Workgroup

40. Display banner provided by the Florida Department of Health SFCCC partners use at programs on a rotating basis

41. Synergy Workgroup Activities

42. Web Site: http://sfccc.med.miami.edu

44. SFCCC Collaborators’ Survey Survey Monkey Results 2008-2009

45. Questions • Name of organization • How long with SFCCC • Collaboration with other members • Name of organization • How collaboration began • Type of collaboration • Outcome of collaboration • Ongoing?

48. Thank you