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Managing Health Information: We’re In It Together

Explore internet growth trends, active eHealth consumers, and the potential of global collaboration in health information management at the Nordic-Baltic EAHIL Workshop in Oslo, Norway, in June 2003. Learn about connecting MEDLINEplus with local resources, fostering partnerships among librarians, physicians, patients, and educators to enhance access to quality health information worldwide.

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Managing Health Information: We’re In It Together

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  1. Managing Health Information:We’re In It Together Nordic Baltic EAHIL Workshop June 25-28, 2003 Oslo, Norway Eve-Marie Lacroix National Library of Medicine National Institutes of Health U.S. Dept. of Health and Human Services

  2. Global Internet – Local Reach • Internet – Global look • E-Health today • Collaboration • Go Local – Health Information • MEDLINEplus • PubMed Links • PubMedCentral

  3. Internet Growth Trends • 1977: 111 hosts on Internet • 1981: 213 hosts • 1983: 562 hosts • 1984: 1,000 hosts • 1986: 5,000 hosts • 1987: 10,000 hosts • 1989: 100,000 hosts • 1992: 1,000,000 hosts • 2001: 150 – 175,000,000 hosts • 2002: over 200,000,000 hosts • By 2020, about 80% of the planet will be on the Internet Source: Internet Society

  4. Global Internet-Language Global Reach.biz 2003

  5. US Internet Use • 178 million current Internet users • 122 million active Internet users • The active user: • Visits 98 domains per month • Spends 25 hours per month on the Net Source: Nielsen/NetRatings May 2003

  6. Broadband Source: Neilson/Ratings May 2003

  7. Active eHealth Consumers Online Millions of U.S. Adults (18+) Q3 200296.7M Online = Monthly or More Q3 200263.3M65% of The Online Segment MID-YEAR Source: Cybercitizen Health v2.0 Manhattan Research, LLC 2002

  8. Health-Related Activities Online(Past Three Months) Significant Growth in the Connectivity Continuum Source: Cybercitizen Health v2.0 Manhattan Research, LLC 2002

  9. Looking Forward “It’s just the dawn of the Information Age. You ain’t seen nothing yet.” Larry Ellison, CEO Oracle Corp. July 19, 2002

  10. The Potential • Internet – unrealized potential • Access to health information • Reach every person in the world • Internet – tremendous challenges • Many interfaces,developers,sponsors • Quality, currency, appropriateness • Language

  11. Working Together • Librarians – medical, public, all • Physicians & Health Care Providers • Publishers • Patients, general public • Educators • Engineers, technologists

  12. “Go Local”Linking MEDLINEplus and Local Resources

  13. MEDLINEplus Go Local Model

  14. NC Health Info • Funded by NLM • Partnership at University of North Carolina at Chapel Hill • Health Sciences Library • School of Information and Library Science • Launch at NC site in December

  15. Pittsboro Memorial Library

  16. Linking to local health resources on the web • Community resources • Health classes, support groups, home health care providers, hospices • Healthcare providers • Dentists, counselors, breastfeeding consultants, massage therapists • NOT: medical or disease information • Provided by MEDLINEplus

  17. NC Health Info Partners • Public libraries and librarians • Health educators - county public health departments • AHEC libraries and librarians • State health professional associations (physicians, dentists, nurses, etc)

  18. Health information & local resources Example - Breast Cancer NC Health Info • Health screening services • Cancer care facilities • Support groups • Exercise and yoga classes • Providers of wigs and prostheses • Oncologists • etc. • MEDLINEplus • NIH Info • News • Overviews • Treatment • Coping • Research • MEDLINE search • ClinicalTrials.gov • etc.

  19. MEDLINEplusen español

  20. MEDLINEplus en español • Over 550 health topics • 4,000 encyclopedia articles • 150 interactive tutorials • Coming: drugs, news • > 3 million page views in May by 350,000 unique visitors • 120 countries – Mexico, Spain, Latin America, Switzerland, Portugal, Finland…

  21. MEDLINEplus Survey – February 2003 3) After completing the survey, visitors continued searching. Intercept/Survey Process: 1) MEDLINEplus visitors were randomly intercepted on the site and asked to take part in the survey. Visitors had the option to take the survey in either English or Spanish. 2) Visitors who agreed to take part in the survey were temporarily redirected to take the survey in a separate browser window.

  22. Country of Residence * - - No respondents * Less than .5%

  23. Key findings • Most find MEDLINEplus from a search engine or web page – 68% • Most use MEDLINEplus from home – 60% • Most users are female – 70% • Over 95% said they are “likely to return” – 98% for the English site.

  24. Health Information Prescription Partners: American College of Physicians American Society of Internal Medicine Foundation Medical Libraries

  25. Prescription Pad

  26. Linkout - Libraries

  27. HINARI - LinkOut

  28. Incident Command Local Incident Server (Laptop) WISERsystem concept HSDB WAN Wireless PDA to local server Connected Wireless PDA to local server LAN Wireless PDA to PDA HAZMAT Specialists Warm zone LOCAL INCIDENT AREA First Responders Hot zone Local Fire and Rescue Unit Disconnected WISERWireless Information System for Emergency Responders http://nextcentury.com/WISER

  29. PubMed on TAP For more info: http://archive.nlm.nih.gov/proj/pmot/eval.php

  30. Click for audio of text Click for even larger text

  31. Additional topics • Hearing - NIDCD • Balance disorders - NIDCD • Arthritis - NIAID • Breast cancer - NCI • Colorectal cancer - NCI • Lung cancer - NCI • Prostate Cancer - NCI

  32. PubMed Central

  33. PubMedCentral Backfiles • Publishers & Associations • Scan and uncorrected OCR • High volume scanning of guillotined volumes, not NLM’s archival copy • Quality review and link images to PubMed

  34. PMC Journals • Journals published by the American Society for Microbiology • Proceedings of the National Academy of Sciences 1915 - • British Medical Association (1857-1998) • Canadian Medical Association Journal (1911-2000) • Bulletin of the Medical Library Association ( 1911-2000) • Annals of Internal Medicine - ACP

  35. Internet: http://www.nlm.nih.gov Email: custserv@nlm.nih.gov

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