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Indicators to be included in the final list for EC

Indicators to be included in the final list for EC. Eurochip-3 WP6 meeting Brussels, September 9, 2011. Preambula. Uniform definition of cancer rehabilitation Description of cancer patient rehabilitation programmes in each country, whether rehabilitation is part of the national cancer plan

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Indicators to be included in the final list for EC

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  1. Indicators to be included in the final list for EC Eurochip-3 WP6 meeting Brussels, September 9, 2011

  2. Preambula • Uniform definition of cancer rehabilitation • Description of cancer patient rehabilitation programmes in each country, whether rehabilitation is part of the national cancer plan • Availability of national guidelines for cancer patient rehabilitation, training courses for rehabilitation, councelling for cancer patients and family members, home care for cancer patients

  3. Desired indicator: prevalence Total prevalence • 5-year prevalence • 2-year prevalence by cancer site, by age, by gender Category: burden of disease Data source: cancer registries Priority: high

  4. Cond survival, non-cured, qualified prev • Qualified prevalence – desired indicator in spite the technical problems • Conditioned survival – in absence of qualified prevalence • Proportion of non-cured patients – in absence of qualified prevalence Category: rehab needs Data source: scientific research Priority: medium-low

  5. Category: success of treatment and rehab services Data source: EORTC questionnaire to cancer patients and a sample of general population plus a survey to map the patients' rehab needs and how well they are met Pilot studies needed to ensure methodology Priority: high Quality of life

  6. To be included in the final list Data source links between cancer registries and other databases or survey to cancer patients Data protection issues to be solved Return to work

  7. Home assistance, place of death, etc - excluded Still important part of rehabilitation needing ad hoc discussion by Associations of palliative care Palliative care

  8. Specialised care • No of sessions with a specialist recommended by national guidelines, and actual no of meetings • Head and neck cancer – speech therapist • Breast cancer – physiotherapist • Colon cancer – dietician • All cancer – psychological support

  9. Suggestions to the EC in the final report • Sustainable pan-European cancer research programme needed, including area of rehabilitation • Mentoring, training courses as a joint action • Harmonize quality assurance + accreditation • Guidelines for rehabilitation needed

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