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The Nurse Experience EWGGD, Paris 2012 Liz Morris UK. Disclaimers. Fees for speaking/travel grants received from Genzyme and Shire. Nursing: UK origins. Origins in the 19 th century Unskilled helpers Florence Nightingale 1860. Nursing: today.
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The Nurse Experience EWGGD, Paris 2012 Liz Morris UK
Disclaimers Fees for speaking/travel grants received from Genzyme and Shire Innovation and excellence in health and care
Nursing: UK origins • Origins in the 19th century • Unskilled helpers • Florence Nightingale 1860 Innovation and excellence in health and care
Nursing: today “To help people sick or well in the performance of those activities contributing to health or its recovery …that they would perform unaided if they had the necessary strength will or knowledge…. to help people gain independence as rapidly as possible” Virginia Henderson 1966 Innovation and excellence in health and care
Nursing : Gaucher disease Innovation and excellence in health and care
Nursing: roles Innovation and excellence in health and care
Nursing: Enzyme Replacement Therapy (ERT) Zimran A, Hollak C et al Home treatment with intravenous enzyme replacement therapy for Gaucher disease: an international collaborative study of 33 patients Blood vol82, no 4 (August15), 1993:pp110--1109 Innovation and excellence in health and care
Nursing: home ERT schemes Work in preparation by C E M Hollak et al data from 2008 Providers Hospital Community Industry Innovation and excellence in health and care
Nursing: equipment Innovation and excellence in health and care
Nursing: venous access Nursing packages Nurse administration Training patient/carer Cannulation only On call Innovation and excellence in health and care
Nursing: equipment Innovation and excellence in health and care
Nursing: home therapy safety Home ERT >20 years experience (182 patients) 4 reported AE’s – allergic responses, 1 severe Central venous access device (CVAD)complications - 2 patients port-a- cath central sepsis (both splenectomised) - 3 blocked ports Innovation and excellence in health and care
Thank you Innovation and excellence in health and care
Nursing: the patient Innovation and excellence in health and care