Presentation Transcript

1. Communities in Transition: Successful Outcomes in Donation Authorization for Multicultural Populations

2. Black Population Groups

   Kim Van Frank Executive Director, Mid-South Transplant Foundation Sarah Oland, LMSW Manager, Family Services, Midwest Transplant Network Nancy Kay President/CEO, LifePoint, Inc.

3. BlackAuthorization Rates Spiraling Up

   Mid-South Transplant Foundation October 2013
4. Designated Service Area Western TN, Eastern AR & Northern MS Serve 34 Counties and 55 Hospitals Population: 2.1 million TN-MS-AR Core Based Statistical Area 48% White 46% Black 6% Other Races
5. DATA Then vs Now
6. Overall Conversion Rates
7. Overall Authorization Rates
8. Authorization Rates
9. FOCUS
10. Brainstorming Session Diverse staff but relied heavily on African American staff for honest input Mistrust of medical community Families did not feel we care for loved one Fear of premature death to recover organs Concerns of racism Cultural differences Family hierarchy and structure Faith differences Spirituality and faith - central part of their lives
11. Three Strategies Minority Support Liaisons Right People Doing Right Job Community Partnerships Support for African American families during the time they are facing the death of loved one. Hire the right individuals to work with families AND train them properly to perform their job Built strong foundations in the African American community
12. Community Partnerships GOAL To Become a Trusted and Familiar Friend of the Community Through Strong Partnerships PLAN More involved in African American community – Faith Based “Looking Beyond the Walls of the Sunday Morning Sanctuary”
13. Community Partnerships Hospitals Event Promoters Gospel Music Events/ Children’s Sing Event Congregational Health Network Church Health Center Media Laying the Foundation Relationship Building/ Church of the Week Congregational Health Promoters Pastors’ Coalition National Civil Rights Museum 50 Members/Quarterly Education Black History Month
14. Community Partnerships To learn more about this strategy: Contact: Erskine Gillespie Community Development Coordinator Office: (901) 328-4438 Webinar: Association for Multicultural Affairs in Transplantation (AMAT) Recorded on September 5, 2013 “Building and Embracing Community and Professional Partnerships and Relationships”
15. Minority Support Liaisons Began utilizing “Like Requestors” in 2008 Utilized current staff Kip Alexander Zola Burgess
16. Minority Support Liaisons Promote quicker bond with families as they are culturally connected Helpful for families to have someone that “Looks Like Me” More connected spiritually Understand cultural issues Family hierarchy and structure More accurately determine “decision makers” and “gatekeepers” Difference in vocabulary and syntax Assist in identifying subtle connotations and gestures
17. Minority Support Liaisons RESULTS Relatable to African American Donor Families Breakdown Barriers of Mistrust Assist in Dispelling Myths and Misconceptions Speak the Same Language both Spiritually and Culturally Partner with our Family Care Coordinator as an additional resource to assist with the families we support
18. Authorization Rates – LR vs No LR
19. Minority Support Liaisons Right People to Serve as Like Requestors “Partnership” among the Family Care Team and Like Requestors
20. Right People Doing Right Job History September 2005 - Awarded HRSA Grant Replicate In-House Coordinator Program developed by Life Gift of Houston October 2005 - Hired our first Family Care Coordinator March 2006 - Moved the primary responsibility for authorization for donation from Organ Recovery to Family Care
21. Overall Authorization Rates
22. Right People Doing Right Job New Manager of Family Care Department in 2008 Revamped Qualifications for Family Care Coordinator Ashley Black Ruth Lovell Beth Larsen
23. Right People - Training Changed Timing of Approach Companion Families Rather than Just Approach Develops Relationship and Trust Validate Family’s Emotion Belief that Most Families Desire to Help Others Families Have Something to Teach Us About What They Need and What Their Values Are The Center for Loss and Life Transition Gift of Life Institute in Philadelphia
24. On-Site Support Hours by FCC
25. Right People – Pulling It All Together Asking for Authorization vs Disclosing Donor Designation Embracing Concept of Companioning Families Better Understanding of Grief & Emotions of Family Offering Families a Unique and Special Opportunity Through the Option of Donation Utilizing Like Requestors Weekly Consent Training Debrief Cases Reinforce techniques, styles of approach, scripting, diversity training, role play and video FCC during training
26. Authorization Rates
27. OUTCOME Applaud and Share our Success

28. Authorization with African American Families

    Sarah Oland, LMSW soland@mwtn.org
29. Midwest Transplant Network 5.4 million population 210+ organ donors 1200+ tissue/cornea donors
30. About us… 88% overall CMS conversion rate 71% of African American families authorize donation 1.50 Odds Ratio Estimate (50% more likely for AA to authorize donation than the average) African American Population Kansas 5.9% (Wichita 28.3%) Missouri 11% (Kansas City 29.9%) Over the last 5 years, 10% - 14.4% of MTN donors have been African American (20-30 per year)
31. Not A Single Thing…but multitudes of them Generosity knows no color: Cultural Competency Every week is Minority Organ Donation Week: Community Engagement and Outreach Fostering the Testimonial: Compassionate Family Support
32. Cultural Competency Education & Training Formal education and trainings focused on cultural sensitivity and competency Weekly Referral Meeting debriefings with particular attention paid to cultural interactions (all teach, all learn) Rev. Isaac Ruffin’s clergy follow up Inclusion & access ------------------------------------------------------------------------- *Strip and go naked*Be genuine in caring*Trust*Pacing*Start where the family is*Honoring uniqueness of each family* People may not always remember exactly what you said or what you did, but they will always remember how you made them feel. * Michael Port
33. Community Engagement and Outreach Building alliances (People & Places) Consistency & follow through on commitments Honor the small stuff Calendars/Events/Celebrations Flexibility: Weekends, Evenings, Time, Last minute requests Listserves & Speakers Bureaus --------------------------------------------------------------------------------- *Black Healthcare Coalition*Samuel Rogers*Women of Faith* MDAS*AKA Sorority*LINKS*Concerned Clergy*Elected Officials*Black Healthcare Associations*Black Masons *Minority Colleges*Office of Minority Health*Barber/Beauty Shops*Mayoral/Governor Proclamation*DMVs*NAACP*
34. Churches & Pastors Individual follow up after donation conversations Donor Sabbath Increased participation each year Post cards, packets, volunteers Health fairs Do them in church on Sundays, attend the service Partnerships for free screenings (to keep you off the list) Know resources for referrals MTN Facebook cross-promotion
35. How we spend our Saturdays…
36. Compassionate Family Support Tend to the testimonial Consistent care with every department at every point of service Inclusion in events, annual calendar, videos Facebook Family page Ambassador Training Memorial cards Funerals MTN does not match requestors…usually
37. Memorial Cards…and Green Bracelets
38. The Gift…
39. Outreach for…