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Enhanced Perinatal Surveillance System in Texas Presenter: Elvia Ledezma May 30, 2007 Texas Department of State Health Services. Enhanced Perinatal Surveillance (EPS). Purpose: Monitor and reduce perinatal HIV transmission in Texas. How is EPS data used?.
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Enhanced Perinatal Surveillance System in TexasPresenter: Elvia LedezmaMay 30, 2007Texas Department of State Health Services
Enhanced Perinatal Surveillance (EPS) • Purpose: • Monitor and reduce perinatal HIV transmission in Texas.
How is EPS data used? • Determine effectiveness of perinatal transmission efforts • Determine effectiveness of antiretroviral therapy (ART) • Determine reasons for prevention failures • Evaluate adverse outcomes from ART use
Enhanced Perinatal Surveillance (EPS) Project Sites, 1999-2007
EPS Data Collection • Instrument • Basic demographics for both mother and child • Maternal information • Prenatal care • HIV testing • ARV therapy • Substance use • Clinical information
EPS Data Collection, cont. • Child information • Birth history • Pediatric history
Personnel • 12 satellite surveillance sites • 5 regional public health offices • 4 city/county health departments • 3 county health departments
Texas HARS Sites Arlington Austin Beaumont Cactus Corpus Christi Dallas El Paso Fort Worth Galveston Houston Lubbock San Antonio Tyler
Texas EPS Target AreaBased on 1999-2005 Data • Residence of HIV+ women at time of delivery • 108 counties • 223 cities • 201 hospitals where HIV+ moms gave birth • 350 infants born annually to HIV+ moms
EPS Case Identification • Review of medical records • Provider/HARS staff communication • Lab reports • Birth certificate matching
EPS Data Collection • Medical chart abstraction at provider offices • Birth facilities • HIV clinical care provider • Prenatal care provider • Pediatric provider offices • Birth/death certificates
EPS Data Collection, cont. • Follow-up of the child • 6 months • 12 months • 18 months
What are the Data Collection Challenges that are Encountered?
Types of Challenges • Geography • Personnel • Data sources • Identification and follow-up of children
Geographical Challenges • Sheer size of Texas : • 261,797 square miles • 660 miles long by 790 miles long • 254 counties • 550 licensed hospitals
Personnel Challenges • Multiple tasks • Enhanced perinatal surveillance is added to the long list of tasks they already perform
Data Collection Challenges • Multiple record abstractions • Availability of prenatal care provider records • Prenatal care and pediatric care provider identification
Identification and Follow-up Challenges • Identification of infected infants • Children lost to follow-up • Indeterminate HIV status • Lack of medical care • Negative PCR Tests • Foster care and adoption • Change in residency
Contact Information • Elvia Ledezma, MPH Epidemiologist Texas Department of State Health Services (512)-533-2045 elvia.ledezma@dshs.state.tx.us