Health Data Dictionaries and the Philippines experience using openHDD

1. Health Data Dictionaries and the Philippines experience using openHDD A JLN Information Technology Initiative Webinar 12 December 2013

2. Welcome! ReadyTalk Webinar Instructions: • To see: Connect to the webinar through the link provided in your confirmation. • To hear: Select from one of three options to connect to the audio portion of the webinar. • Dial into the conference line using the phone numbers provided in your registration. • Receive a call to your phone from the conference. Press Use Phone button on the webinar screen and enter your phone number. Or email barenth@path.org with your name, country and phone number. • Connect via the web using your computer. Press Use Computer button on the ReadyTalk conference screen. JLN Webinar: Health Data Dictionaries and the Philippines experience using openHDD A few facilitation notes: • This webinar will be recorded so it can be shared. • Your audio will be muted by the facilitators to ensure the best sound quality for all. If you have questions, please use the chat feature. Our facilitators will track and address them. • If you have any trouble connecting to the webinar, please send an email to barenth@path.org for assistance.

3. About the Joint Learning Network (JLN) • The Joint Learning Network for Universal Health Coverage is a unique practitioner-to-practitioner learning network. • JLN connects low- and middle-income countries with one another so that they can learn from one another’s successes and challenges with implementing Universal Health Coverage (UHC). • JLN’s nine member countries are: Ghana, India, Indonesia, Kenya, Malaysia, Mali, Nigeria, The Philippines, Vietnam. • More information is available at www.jointlearningnetwork.org • Today’s webinar is hosted by the JLN Information Technology Initiative facilitators PATH and PharmAccess and generously funded by the Rockefeller Foundation.

4. Agenda for today’s webinar • Health Data Dictionaries – How to get started creating a health data dictionary using the openHDD tool • A country case study of the Philippines experience creating a health data dictionary • Questions and answers

5. Introducing our speakers Michiel Berende, consultant with PharmAccess Foundation Mr. Berende has supported the development and maintenance of openHDD with PharmAccess. In addition, he is a facilitator of the Microinsurance Network Technology Working Group that focuses on standardisation, data collection, communication, management information systems and services to support insurance practitioners and trainers working with these organisations. Art Alcantara MD, MBAH, Chief, Task Force on Informatics, Philippine Health Insurance Corporation (PhilHealth) Dr. Alcantara helped establish PhilHealth’s health data dictionary. In addition, he has been responsible for the implementation of business intelligence and analytic solutions at PhilHealth as well as the management of data collection, extraction, mining, analysis, reporting and dashboard system development.

6. Introducing our topic: Health Data Dictionaries Different definitions of the word “cold.” • An accident victim brought into the emergency room tells the attending physician, “I feel cold.” • A pulmonologist tells a 58-year-old male patient that he is suffering from COLD—chronic obstructive lung disease. • You call your family practitioner for an appointment and tell the receptionist, “I have a bad cold that’s not getting better.”

7. Health Data Dictionaries What is it? • A data dictionary, or metadata repository, as defined in the IBM Dictionary of Computing, is a "centralized repository of information about data such as meaning, relationships to other data, origin, usage, and format. • A health data dictionary incorporates and links terms from multiple clinical or health information systems to document standard terminologies. It maps disparate medical terms to give data context and meaning. • openHDD is an open source tool developed by PharmAccess for the JLN Information Technology Initiative with funding from the Rockefeller Foundation. The tool provides the means to document terms and to use/share other country data dictionary information as a starting point. Why have one? • A health data dictionary is used to standardize health data to make it more interoperable and computable. How to create one?

8. openHDD – Flowchart Getting Started

12. Philippines • 7,107 islands • Population: 98 Million people • Land Area: 300,00 km2 • Healthcare Providers: 1,736 hospitals PhilHealth • A tax-exempt Government Corporation attached to the Department of Health for policy coordination and guidance • Primary function is to administer the National Health Insurance Program

13. PhilHealth Data Dictionary • Corporate Dictionary • Collection of terms used by PhilHealth to define certain programs, activities, processes or any terminology imperative to its functions and purpose • E-claims Data Dictionary • Contains terms including its definitions and metadata used in PhilHealth Electronic claims

14. PhilHealth Data Dictionary Developmental Stages: • Conceptual Design • Consolidation and Validation • Deployment

15. Conceptual Design Conducted Consultative Meetings with: • Department of Health • Policy Makers • Academe • Consultants • Experts

16. Conceptual Design Standards • METeOR (Metadata Online Registry) NHDD developed by the Australian Institute of Health and Welfare • Shafafiya Data Dictionary HDD developed by the Health Authority Abu Dhabi

17. Conceptual Design Sample design template used based on standards and consensus:

18. Consolidation and Validation Collaboration between : • End-users • Business Process Owners • Management • IT • Agreements made in definition and metadata

19. Deployment Superluminate • fully functional, web based, thin client, open source data dictionary application

20. Deployment openHDD • Open source data dictionary application • Customizable • Real-time online support • User friendly

21. Factors of Success • Political • Management support • Organizational • Close collaboration amongst the stakeholders • Enthusiasm • Technical • Standards already being used in other countries Technical support • Financial • Technical assistance funded by donor agencies

22. Challenges Implementation • Difficulty getting the people to agree in some critical definitions • Lack of commitment from some offices and agencies • Constant updating of the data dictionary due to changing policies and leadership Sustainability • Depends on the support given by the technical provider

23. Future Directions • Official recognition of the data dictionary for e-claims implementation • Integration with the Department of Health’s Health Data Dictionary • Increase adoption of international standard/s • Publication

24. Thank You

25. For more information: • More information is available at www.jointlearningnetwork.org • JLN Paper: “Promoting Interoperability of Health Insurance Information Systems Through a Health Data Dictionary”http://www.jointlearningnetwork.org/sites/jlnstage.affinitybridge.com/files/HealthDataDictionarySeries.pdf • JLN launch page for openHDD: http://jointlearningnetwork.org/content/openhdd • openHDD overview video: http://www.youtube.com/watch?v=22WDAcD0Es4&feature=player_embedded • Contact: Caren Althauser calthauser@path.org