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IBD Standards – what next?

IBD Standards – what next?. Richard Driscoll Chairman IBD Standards Group. 2006 – 2012: IBD UK-wide projects. 2006 IBD Audit (1) 2007 IBD Standards Group formed 2008 IBD Audit (2) into the Annual Health Check 2009 IBD Standards launched with political lobbying IBDQIP funding agreed

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IBD Standards – what next?

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  1. IBD Standards – what next? Richard Driscoll Chairman IBD Standards Group

  2. 2006 – 2012: IBD UK-wide projects • 2006 IBD Audit (1) • 2007 IBD Standards Group formed • 2008 IBD Audit (2) into the Annual Health Check • 2009 IBD Standards launched with political lobbying IBDQIP funding agreed • 2010 IBD Audit (3) in the National Programme • 2011 IBDQIP first round pilots • 2012 IBD Audit results onto NHS Choices IBD Audit funding extended to 2014 IBD Registry pilots start BSG et al. Commissioning Guide 2009 – 2012: IBD Service development on meeting agendas

  3. IBD Standards GroupProfessional representatives BSG – Chair IBD Section, Cathryn Edwards, Tom Smith ACPGBI – Chair IBD Working Group, Graeme Wilson BSPGHAN – Chair IBD Working Group, Mark Beattie PCSG – Chair of PCSG RCN – Two adult and one paediatric IBD nurses BDA – Chair of Gastroenterology Group GI Clinical Pharmacists – Chairperson IBD Audit and IBDQIP – Clinical Leads IBD Registry – Chairman and Clinical Lead

  4. Progress? • Standards have provided a clear framework • Commitment – Audit and IBDQIP participation • Services have developed (Audit and IBDQIP) • IBD Audit nationally funded • NICE – Guidelines/Quality Standards commissioned • Some Government engagement • Scotland and Northern Ireland • Continuing collaboration among professional groups

  5. Questions? • If the IBD Standards are not mandatory, how can we get support to implement them • How do the IBD Standards, Audit, QIP and Registry fit together? • How can we fund the projects long-term? • What real benefit is there in taking part in the national projects? (entering the data) • What are the implications for IBD of the changes in NHS England/Scotland/Wales/NI?

  6. If not mandatory ..........what? • We must use the levers that drive change in each devolved UK healthcare system • Guidelines/Quality Standards (safety/effectiveness) • Quality Measures/Targets (performance data) • Funding mechanisms/Value for money programmes • Link with policy on Long-term Conditions • Engage in commissioning/service modernisation initiatives

  7. IBD Standards – phase 2 • Develop a consensus on a few key measures that best represent quality of IBD care • Collectable, UK-wide, influence all 4 nations • Agree one or more PROMs • Recommend methods for systematically capturing patient experience • Enabling bench-markingin IBD Audit and IBDQIP • Develop a model pathway for the care of IBD patients not in active hospital management • Ongoing • Co-ordinate strategy and political activity • Communication

  8. An IBD Strategyfrom Projects to Programme • Objectives • Coordinated/integrated • Cost-effective/sustainable • Long-term funding arrangement • Formal stakeholder representation • Transition • 2012/14: (re)alignment of projects and planning for the long-term future • 2014/15: a consolidated IBD Programme

  9. The need for active national leadership • Scotland • IBD Interest Group becoming the IBD ‘Section’ of the Scottish Society of Gastroenterology • Northern Ireland • IBD Interest Group (2 year relationship with government officials and commissioners) • Wales • Welsh Association for Gastroenterology and Endoscopy (IBD specific sub-group needed?) • England • National organisations – NHSCB • Further develop regional IBD networks?

  10. Engaging commissioners/Health Boards/Trusts IBD unlikely to be high on their agenda We need in IBD/Gastroenterology to take the initiative Show how services can be redesigned locally to improve care and offer best value Must share what we learn as we engage locally We need to have a model (possibly models) for doing IBD follow-up differently.

  11. The IBD Programme 2015 and beyond – how might it look? IBD Audit & Quality Improvement Programme Multi-stakeholder Steering Group Based in RCP Clinical Effectiveness Unit IBD Audit Contract QIP Self-Assessment Tool Peer visits to RCP framework Web Resources/Seminars IBD Registry Multi-stakeholder Board Project-managed in the BSG Vehicle for the Audit Benchmarking Research IBD Quality Measures and Audit Topics IBD Standards Group – strategy, development projects, political co-ordination and communication Current membership + devolved nations’ representation Company support for service development and learning

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