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Integrating Palliative Care into National AIDS Standards

Integrating Palliative Care into National AIDS Standards. Frank D. Ferris, MD Medical Director, Palliative Care Standards C ENTER F OR P ALLIATIVE S TUDIES San Diego Hospice and Palliative Care “Education and Research in the Art and Science of Palliative Care”

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Integrating Palliative Care into National AIDS Standards

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  1. Integrating Palliative Care into National AIDS Standards Frank D. Ferris, MDMedical Director, Palliative Care Standards CENTER FOR PALLIATIVE STUDIES San Diego Hospice and Palliative Care “Education and Research in the Art and Science of Palliative Care” Department of Family and Preventative Medicine, UCSD School of Medicine Department of Family and Community Medicine, andJoint Center for Bioethics, University of Toronto

  2. Available at: www.CPSOnline.info Publications / presentations

  3. Objectives • Framework to Guide Quality • What AIDS guidelines exist • What Palliative Care guidelines exist • Next Steps

  4. Framework toGuide Quality

  5. Culture / Diversity

  6. Culture / Diversity • Ethnicity • Religion • Gender

  7. Ethical Principles Culture / Diversity

  8. Ethical Principles • Autonomy • Beneficence • Nonmaleficence • Justice • Non-discrimination • Truth-telling • Confidentiality

  9. OrganizationalorNational Model Ethical Principles / Laws Culture / Diversity

  10. OrganizationalorNational Model Mission Statement Ethical Principles / Laws Culture / Diversity

  11. Mission Statement • Mission of San Diego Hospice and Palliative Care: “To prevent and relieve suffering, and promote quality of life at every stage of life through patient and family care, education, research and advocacy.”

  12. OrganizationalorNational Model Beliefs Mission Statement Ethical Principles / Laws Culture / Diversity

  13. Beliefs We believe that: • No one should live in pain. • No one should live in fear. • No one should die feeling alone. • Everyone deserves to be a partner in her/his care, not just a patient.

  14. Beliefs We believe that: • Children deserve to have their grief honored and their lives celebrated. • We are changing the way people face living, dying and death. For the better.

  15. OrganizationalorNational Model Beliefs Values Mission Statement Ethical Principles / Laws Culture / Diversity

  16. Values • Integrity • Trust • Respect • Honesty • Dignity

  17. OrganizationalorNational Model Beliefs Values FoundationalConcepts Mission Statement Ethical Principles / Laws Culture / Diversity

  18. Foundational Concepts • Effective communication • Common language • Shared communication protocol • Shared teaching strategy “Everyone is a teacher”

  19. Foundational Concepts • Effective Group Leadership / Dynamics “Everyone is a leader”

  20. Foundational Concepts • Effective Change Strategies “Everyone is a change agent”

  21. OrganizationalorNational Model Guiding Principles Beliefs Values FoundationalConcepts Mission Statement Ethical Principles / Laws Culture / Diversity

  22. Guiding Principles • Patient and family focused • High quality • Safe and effective • Accessible • Adequately resourced • Harm reduction • Non-punitive environment

  23. Clinical Domains Guiding Principles Beliefs Values FoundationalConcepts Mission Statement Ethical Principles / Laws Culture / Diversity

  24. Clinical Domains • Disease management • Physical • Psychological • Social • Spiritual • Practical • End of life / death management • Loss, grief

  25. Clinical Domains Organizational Resources Guiding Principles Beliefs Values FoundationalConcepts Mission Statement Ethical Principles / Laws Culture / Diversity

  26. Organizational Resources • Financial • Human • Informational • Physical • Community

  27. Clinical Domains Organizational Resources Principles by Domain Guiding Principles Beliefs Values FoundationalConcepts Mission Statement Ethical Principles / Laws Culture / Diversity

  28. Clinical Domains Organizational Resources Standards of Practice Principles by Domain Guiding Principles Beliefs Values FoundationalConcepts Mission Statement Ethical Principles / Laws Culture / Diversity

  29. Clinical Domains Organizational Resources • Guidelines: • Practice • Data Collection • Documentation Standards of Practice Principles by Domain Guiding Principles Beliefs Values FoundationalConcepts Mission Statement Ethical Principles / Laws Culture / Diversity

  30. Practice Guideline Pain: • Background • Assessment • Information-sharing • Decision-making • Care planning • Care delivery • Confirmation

  31. Clinical Domains Organizational Resources Outcome Assessment /Performance Improvement • Guidelines: • Practice • Data Collection • Documentation Standards of Practice Principles by Domain Guiding Principles Beliefs Values FoundationalConcepts Mission Statement Ethical Principles / Laws Culture / Diversity

  32. Outcome Measurement • Simple • Complex

  33. Performance Improvement • Strategies to continuously improve outcomes of care

  34. Clinical Domains Organizational Resources Outcome Assessment /Performance Improvement • Guidelines: • Practice • Data Collection • Documentation Standards of Practice Principles by Domain Guiding Principles Beliefs Values FoundationalConcepts Mission Statement Ethical Principles / Laws Culture / Diversity

  35. WhatGuidelines or ModelsExist forAIDS Care ?

  36. WhatGuidelines or ModelsExist forPalliative Care ?

  37. Palliative Care Guidelines • Australia • Canada • New Zealand • United Kingdom • United States • Hospice • Palliative Care (soon)

  38. WhatGuidelines or ModelsExist forAIDS Palliative Care ?

  39. www.CPSonline.info

  40. HRSA, USAGuide to Supportive & Palliative Care for HIV-AIDS www.CPSonline.info

  41. Next Steps toIntegrate intoNational AIDS Strategies ?

  42. “The standards of practice we createAnd the people we trainWill look after usWhen it’s out turn to receive care. . .Are you ready?” www.CPSonline.info

  43. Integrating Palliative Care into National AIDS Standards Summary

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