Promoting Inclusive Development: A CBR strategy in Tribal Location

1. Promoting Inclusive Development: A CBR strategy in Tribal Location Shibu George GLRA India 19th International Leprosy Congress, Beijing 18th – 21st September 2016

2. Background • Project ‘Support to People with Disabilities’ is being implemented across predominantly tribal communities in Sendhwa block, Madhya Pradesh, India from November 2013 • Project is co-financed by Ministry of Economic Cooperation & Development (BMZ) and DAHW Germany. St. Augustine Social Service Society is the implementing organization of this Community Based Rehabilitation project with monitoring by GLRA India. 19th International Leprosy Congress, Beijing 18th – 21st September 2016

3. Background - Location & Demography • Sendhwa is an administrative sub-district in Madhya Pradesh in Central India • 287,803 population spread across in 190 villages & one Municipality • 80 % of population are Tribals living in interior hamlets • Literacy rate 52 % • Agriculture is the main livelihood • Estimated 20,940 People with Disabilities in the district (1.51 PR) • Sendhwa contributes 5,035 People with Disabilities (1.78% PR) in the district 19th International Leprosy Congress, Beijing 18th – 21st September 2016

4. Objectives • To improve the quality of life of People with Disabilities and enable them to play an active role in their social and economic life with family and community • To help the People with Disabilities to gain equal rights in the society and to participate equally in the community by establishing bridge between the individuals, family and the community • Project attempts to remove the barriers of People with Disabilities for accessing various services provided by the Government departments and civil society organizations 19th International Leprosy Congress, Beijing 18th – 21st September 2016

5. Methods • The project works in all the 5 domains of Community Based Rehabilitation • Health • Education • Social • Livelihood • Empowerment • Project envisioned, through inclusive effort and collective advocacy People with Disabilities including leprosy accessing entitlement's and social security benefits 19th International Leprosy Congress, Beijing 18th – 21st September 2016

6. Methods – Interventions • Baseline survey to identify and assess the real life situation of People with Disabilities • Formation of inclusive Self-Help Groups & Disabled People Organizations (DPO) • Vocational training • Disability screening, prevention, disability certification camps • Seed money support to SHGs & DPOs for income generation and Linking to National Rural Livelihood Mission • Facilitation to avail social welfare schemes & Provision of assistive devices • Home based self care – self esteem training to affected & their care givers • Sensitization of civil body leaders involving government departments / authorities • Information, education & advocacy campaigns on rights • Constitution of Disabled People Federation (DPF) as an independent society for sustenance of activities 19th International Leprosy Congress, Beijing 18th – 21st September 2016

7. Findings - Baseline Survey 5135 people with disabilities living in Sendhwa 36.4 % loco motor disability 26% Multiple disability 14.5% with visual impairment 6% hearing impairment 4.4% Gr. II Leprosy disability 13.7% other disabilities 19th International Leprosy Congress, Beijing 18th – 21st September 2016

8. Findings - Socio Economic Status • 73% are illiterate and 7% have not completed primary education • 60.4% are male population and majority are between age group 30-40 years • 35% children with disability only have access to education • 6% are participated in the social programs • 4% only have membership in the Self-Help Group. • 12% only have the National Disability Certificate • 25% do not have the ration card to get their food grains 19th International Leprosy Congress, Beijing 18th – 21st September 2016

9. Results- Screening, Prevention and need based services • Prevention programme offered • 33 new Leprosy cases detected and referred to PHC for treatment • 316 cataract surgeries • Provision of 15 hearing aids • 21 leprosy affected people referred for ulcer management and Re-constructive surgery • 1707 PWDS obtained disability certificate Screening camps & disability certification 19th International Leprosy Congress, Beijing 18th – 21st September 2016

10. Results – Supply of Assistive devices 19th International Leprosy Congress, Beijing 18th – 21st September 2016

11. Result - Social Security A detailed list of people with disabilities who are not availing social security schemes has been submitted to the government 19th International Leprosy Congress, Beijing 18th – 21st September 2016

12. Result - Self care & Self Esteem training for PwDs Self-care kits were distributed, with assistive/supportive materials, for mentally challenged persons Improving self-esteem 19th International Leprosy Congress, Beijing 18th – 21st September 2016

13. Result - Skill Development Weaving loom Tailoring training Vermin compost making 19th International Leprosy Congress, Beijing 18th – 21st September 2016

14. Results - IEC & Advocacy 19th International Leprosy Congress, Beijing 18th – 21st September 2016

15. Result – Formation of SHGs & DPOs • 154 SHGs formed (each SHG have 10-15 members), 1800 members • 30 DPO's (20-35 members each) were formed with 964 members. • Selected leaders among the mobilized group • Initial training with DPO Leaders & Project staff completed • Capacity building of DPO’s is progressing • Disability People’s Federation is registered Self Help Group meeting 19th International Leprosy Congress, Beijing 18th – 21st September 2016

16. Result - DPO Constitution DPF Block level 30 DPO’s GP level Cluster 1 4-5 SHG Cluster 2 4-5 SHG 150 SHG’s Village level 19th International Leprosy Congress, Beijing 18th – 21st September 2016

17. Conclusion • Confidence and awareness about the rights among People with Disabilities and family members need to be increased while promoting inclusive rehabilitation • Motivation of People with Disabilities to access to entitlements in the forms of Education, Scholarship, Mobility aid & appliance, Travel concession, Housing scheme, Health insurance and Disability certificate is important to provide a quality life • Social mobilization in the form of SHG, DPO with the involvement of their family members enhances the access of entitlements. • For Disability inclusive development, liaison with local government and affected people participation to be ensured to reach larger population in remote locations 19th International Leprosy Congress, Beijing 18th – 21st September 2016

18. Thank You Co-authors Sr. Julia OSA2 Roland Muller3 G. Srinivas1 J. Ravichandran1 V. Kanagasabapathy1 1 &3 German Leprosy & TB Relief Association 2- St. Augustine Social Service Society, Sendhwa, India 19th International Leprosy Congress, Beijing 18th – 21st September 2016