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Registration Opportunities: Data Quality – Revised Birth and Death Certificates

Registration Opportunities: Data Quality – Revised Birth and Death Certificates. Centers for Disease Control and Prevention National Center for Health Statistics. Data Quality –Birth and Death Certificate Items.

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Registration Opportunities: Data Quality – Revised Birth and Death Certificates

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  1. Registration Opportunities: Data Quality – Revised Birth and Death Certificates Centers for Disease Control and Prevention National Center for Health Statistics

  2. Data Quality –Birth and Death Certificate Items • NAPHSIS/NCHS retreat –What items should be studied? Should items be deleted? How will this be done? • Retreat institutes 3 working groups: 1) Timeliness; 2) IT; 3) Data Quality • Data Quality members included: Isabelle Horon, Cynthia Hooley, Jennifer Woodward, Stephanie Ventura, Joyce Martin, Donna Hoyert and Charlie Rothwell

  3. Workgroup Process • NCHS presented items that could be deleted and why and items we felt should be studied • NAPHSIS surveyed states on 3 items NCHS suggested dropping and requested information on data quality on other items.

  4. Survey results • 3 items NCHS would like to drop –results inconclusive • many States for a variety of reasons do not know about the quality of these 3 items or other items for births and deaths. • overlap between items NCHS wants studied with items of quality concern to the States.

  5. Joint Recommendations • Funding should be available for quality studies in states throughout the five years of the contract. • The primary purpose of these studies is to improve data quality not delete data items • These funds would be in addition to the funds negotiated with the states for the provision of vitals data to NCHS.

  6. Joint Recommendations • Roundtable discussions on items to be studied – We need your input! Use the spreadsheets I sent you! • The results from the survey, comments received at the annual meeting and the work of an ongoing joint state/NCHS committee will determine what data items will be studied during the contract period.

  7. Joint Recommendations • Any items that are deleted can still be collected by state systems and provided to NCHS … NCHS just won’t use them • Items deleted will not impact the contracts – i.e. contract $’s will not be reduced • Modification of items after QC studies will be implemented through joint NAPHSIS/NCHS agreement

  8. NCHS Recommendation • Delete “Non-vertex presentation” • Delete “Was delivery with forceps attempted by unsuccessful” • Delete “Was delivery with vacuum extraction attempted by unsuccessful”

  9. Non-vertex Presentation(Characteristics of Labor and Delivery) • Data Quality: new checkbox item - substantially underreported. • Data utility: under-reporting for this makes its use in research potentially misleading . More detailed and complete information on presentation at birth is available from the Method of Delivery items “breech” and “other presentation.” • Potential for improvement: EHR’s?

  10. Was delivery with forceps attempted but unsuccessful? • Data quality: Very poor • numerous comments/questions from state colleagues and hospitals staff that these questions are confusing • The distribution of records for this item for the 2006, 19-state revised reporting area reveal fundamental inconsistencies in these data. • Data utility: Low

  11. Delivery with vacuum extraction • Same issues as forceps • forceps and vacuum deliveries are becoming rarer and rarer events (only 0.8 and 3.7% of all births in 2006) and expected to decline further. • Potential for improvement for both: EHR’s?

  12. Come to the Roundtable Discussions! • What items should be studied first? • How should changes be made without causing chaos? • Do you think the 3 items that NCHS suggests dropping should be kept, dropped, modified … and why?

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