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Examples of Life Course Development PKU : A Life Course Development Perspective

Examples of Life Course Development PKU : A Life Course Development Perspective. PKU & Life Course Development: Birth to Two Years. Issues : Brain is particularly sensitive to elevated phenylalanine levels Family needs to incorporate care for a metabolic disorder into their lives

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Examples of Life Course Development PKU : A Life Course Development Perspective

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  1. Examples of Life Course Development PKU: A Life Course Development Perspective

  2. PKU & Life Course Development:Birth to Two Years Issues: • Brain is particularly sensitive to elevated phenylalanine levels • Family needs to incorporate care for a metabolic disorder into their lives • Includes the specific aspects of care and accepting the presence of a genetic disorder • Sharing the information with other family members

  3. Potential Barriers: • Information overload • Feelings of fear or guilt • Learning the practical aspects of care • Special formula, counting phes, blood tests • Adjusting to varying appetite of child • Financial constraints • Securing insurance coverage • Cost of formulas and special foods

  4. PKU & Life Course Development:Ages 4-6 years Issues & Potential Barriers: • Entering the school system • Managing a special diet at school • High phenylalanine levels will affect ability to learn • More interaction with the wider world • Play dates • Baby sitters • Child is developing own will • May show resistance to aspects of managing PKU

  5. PKU & Life Course Development:Middle & High School Years Issues & Potential Barriers: • Child has increasing independence and time away from family • Elevated phenylalanine levels can impact school performance and ability to build relationships • They are building a foundation for their future decisions, such as college and career • Peer influence becomes more important • They may not ‘feel different’ if blood levels are elevated

  6. PKU & Life Course Development:Young Adulthood Issue and Potential Barriers: • Much greater independence, legal as well as practical • Risk for maternal PKU • Risk to unborn child • Need for genetic counseling • If in college or working, performance will be negatively impacted by elevated phenylalanine levels • Need ability to communicate with own medical providers • Insurance coverage

  7. Examples of Life Course Development Obesity and Child Health

  8. Obesity and Child Health Emerging major public health problem • Obesity tripled in 20 years Patterns of obesity begin in childhood • 17-18% of children and youth overweight (2006) Implications for lifetime of health problems • Links to type 2 diabetes, cardiovascular diseases, pregnancy complications – Holly Grason

  9. Lifespan: Obesity Impact and Prevention Observationalstudies 1,2 Preschool education 4 Parent education 5 Parent education 5 Teacher curriculum 6 – Guyer B, Ma S, Grason H, Frick KD, Perry D, Sharkey A, McIntosh J. 2009. Early childhood health promotion and its lifecourse health consequences, Academic Pediatrics, 9(3): 142-149.

  10. The development of this slide library was supported by the Association of University Centers on Disabilities (AUCD) through a Cooperative Agreement with Health Resources and Services Administration’s Maternal and Child Health Bureau (MCHB), Grant #UA5MC11068. The content was developed by an interdisciplinary working group comprised of representatives of MCHB funded leadership training programs in the areas of Neurodevelopmental and Related Disabilities (including trainees), Pediatric Pulmonary Care, Nutrition, Public Health, Adolescent Health, AUCD, and representatives from MCHB.

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