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Dena Corden-Le Petit

Dena Corden-Le Petit. Cleft Lip and Palate Association Volunteers. Parent Contact Deputy Chairperson of Stafford Branch Clapa Parent representative for the Cleft lip and palate network board for North West England, the Isle of Man and North Wales (Manchester Hospitals).

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Dena Corden-Le Petit

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  1. Dena Corden-Le Petit Cleft Lip and Palate Association Volunteers

  2. Parent Contact • Deputy Chairperson of Stafford Branch Clapa • Parent representative for the Cleft lip and palate network board for North West England, the Isle of Man and North Wales (Manchester Hospitals)

  3. Mum to Oliver and Niamh

  4. What is a parent contact? “Someone who can provide support, offer reassurance, help with confidence and ensure a new family can enjoy their baby from the benefit of their own experience.” Parent contact Training 2008

  5. Parents – at any stage of diagnosis and treatment Family and friends Clapa Head office Clapa Branches Specialist Nurses Cleft team coordinator Speech and language therapists Other health professionals – GP’s & Midwives Who do parent contacts work with?

  6. Raising Awareness Sponsored events Coffee mornings Fun days Children's Christmas party. Duck race. Branch Activities

  7. Ultimately we want every one to have fun!

  8. Cleft Lip and Palate Network Board for North West England, Isle of Man and North Wales. • New role • Two parents – representing the parents, carers and children who attend the Manchester and Alder Hay Hospitals. • Evolving role – Initial impressions are very positive with active consultation at last board meeting.

  9. In recognition of all our volunteers.A Very Big Thank you!

  10. Nazneen Khan CLAPA Volunteer, llford.

  11. Cleft Lip and Palate Association Branch of the Year!

  12. National Steering Committee Inaugural meeting, 20 September 2008 CLAPA Head Office, London

  13. Reasons • Improve communication/ the relationship between branches and Head Office and inter-branch dialogue • Future meetings focus on improving the services we offer/ how to achieve our goals as CLAPA volunteers

  14. •Andy Till, Aberdeen •Charlotte Cockburn, Glasgow Mary Dawson and Amanda Dunlop, Northern Ireland• Joyce Russell, Merseyside• Jane Whittingham and Tracy Wareham, Stoke• Dena Corden-Le Petit, Stafford• •Mary Newbold, Cambridge •Naz Khan, Independent Vanessa Middleton, Great Ormond Street• Mel and Pete Leslie, Independent• •Barry Hancock, South London & Surrey Natalie Rigg, Bristol•

  15. We discussed: • CLAPA’s Aims • Our reach • The role of branches • The role of Head Office • The realities of running a branch • What difficulties do branches face? • Expectations • Communication • National identity and membership • Key areas for improvement

  16. Role of Branches: • Regional presence • Provide local services -support -awareness raising -fundraising -support for professional team • How many activities do branches actually need to provide? • Concern around merging branches

  17. Branch forum • Some unaware of it or unsure how to use it – will use more now that they know the other people involved

  18. Difficulties faced by branches • Hard to maintain interest • Hard to attract new volunteers • Huge commitment for committee members

  19. How can CLAPA support its branches? • Practical Support • Communication • Bring branches together • Data management • Acknowledgement

  20. Relationship with Cleft teams • Parent Contacts and branches need strong relationships with cleft teams • The cleft team needs to be aware of local branches and that there may be a number in their region • Cleft team needs to have confidence in CLAPA representatives • CLAPA should compliment not compete with the Cleft teams

  21. Information • NHS distribution • Information in the right places and with the right people • Information on the parent experience • Branch/parent contact details in the free starter pack • Press, National Childbirth Trust (NCT) and local mums networks to raise awareness

  22. Parent Contacts • Awareness • More biog for each contact • Use skills in other areas? • Training for health professionals?

  23. Health and Safety, Risk Assessments • Volunteers need more advice from H.O. • Details of insurance and accountability

  24. Some Outcomes • New focus • Clarification of roles and available support • Tools to improve communication • Training

  25. The Future • Annual ‘National Steering Meeting’, combined with a training day • Representative(s) from each branch to attend • Advisory group(s) to work on specific projects: 1. Re-writing the branch manual 2. Deciding our minimum set of services 3. Deciding agenda for next N.S. Meeting

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