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Children and Young People

Children and Young People. Two projects led by CLIC Sargent. For children & young people. Background. Young people’s feedback: Education Health & fitness Employment support A personal perspective: Raina. 7-13 consultation. Focus on family, friends & school Appreciative enquiry model

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Children and Young People

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  1. Children and Young People

  2. Two projects led by CLIC Sargent For children & young people

  3. Background Young people’s feedback: • Education • Health & fitness • Employment support A personal perspective: Raina

  4. 7-13 consultation • Focus on family, friends & school • Appreciative enquiry model • External evaluation Impact of cancer on a child’s world

  5. Policy project • Audit of children’s policy • Any gaps? • Three documents: • Policy map • Influencing proposal • Summary for young people • Policy project manager at CLIC Sargent

  6. Children and Young People

  7. Defining & Evaluating CYP Clinical Priorities Adam Glaser National Clinical Lead

  8. Background • Numbers • <16 years age 1400-1600 new cases/year (16-29 y age 2800-3200 new cases/year) • 78% 5 year survival • 26,000 survivors diagnosed aged under 15 y • Existing structure pre NCSI • National network of treatment/follow-up centres • CCLG Late effects Working Group • National Best Practice Statement & Guidance • NICE IOG mandates life long support and surveillance • >50% long term survivors lost to follow-up • British Childhood Cancer Survivor Study n >16,000

  9. Clinical Reference Group Priorities • Support full re-integration & function • Prevention, early identification and appropriate management of late complications • Empowerment and education • Engagement with service users • Active involvement of survivors/carersby test communities

  10. CYP Clinical Priorities

  11. Who is involved in the testing ?

  12. Outcomes • Projected “estimates” of benefits • Quality innovations to • Improve clinical support and care • Enhance efficiency and productivity • Ensure adequate information sharing • Promote inclusion of all living beyond cancer • Evidence in a format useful to the NHSand health economy

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