1 / 8

Parkinson’s and Dementia

Parkinson’s and Dementia. Steve Ford Chief Executive, Parkinson’s UK DAA Quarterly Meeting, February 2014. Living with a six fold risk. Dementia is likely for people with Parkinson’s x 6 population risk 50 per cent of people with Parkinson’s after 8 years

neo
Download Presentation

Parkinson’s and Dementia

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Parkinson’s and Dementia Steve Ford Chief Executive, Parkinson’s UK DAA Quarterly Meeting, February 2014

  2. Living with a six fold risk • Dementia is likely for people with Parkinson’s • x 6 population risk • 50 per cent of people with Parkinson’s after 8 years • 80 per cent of people with Parkinson’s after 20 years • Lewybody type most common • 10-15 per cent of dementias

  3. Dementia challenges to living well • Two types of dementia known as Lewy body dementias: • Dementia with Lewy bodies (DLB) • Parkinson’s dementia (PDD) • Impact on executive function more than memory + • Visual hallucinations • Fluctuating attention • Sensitivity to antipsychotic drugs • Sleep disorder • parkinsonism (slowness and stiffness)

  4. Societal/system challenges to living well • Stigma of dementia • Low awareness of Lewy body dementias • Delayed and inaccurate diagnosis • Poor management and support of condition • Health and social care: • Not person-centred • Fragmented (poor links between movement and mental healthcare services) • Narrowly focused (condition-specific not holistic)

  5. Cultural Challenge for Parkinson’s UK • Change of ethos since Parkinson’s Disease Society • Move from medical model to self-management and co production • Talking about dementia is ‘too scary’ • How do we empower people and not overload them? • Expanded vision from neurology/movement  mental health  whole life wellbeing

  6. Greater strategic emphasis on dementia • Membership of DAA • Partnership with Lewy Body Society • New strategy themes • Taking control • Delivering excellence / leadership • Research • Credit Suisse • Social research • Pathway work on dementia and end of life care

  7. Opportunities • Political leverage (G8) • Department of Health Dementia Research Champions Group • Neurological commissioning support • Strategic clinical networks • Localism • International collaborations • Parkinson’s nurses

  8. Synergy with DAA • Alignment of values • National dementia declaration • Action orientated - to change ‘intolerable situations’ • NHS Continuing Healthcare • Get It On Time (hospitals and care homes) • Local infrastructure • Track record of working with experts by experience • Support for carers

More Related