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TM. The EPEC-O Project Education in Palliative and End-of-life Care - Oncology. The EPEC ™ -O Curriculum is produced by the EPEC TM Project with major funding provided by NCI, with supplemental funding provided by the Lance Armstrong Foundation.
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TM The EPEC-O Project Education in Palliative and End-of-life Care - Oncology The EPEC™-O Curriculum is produced by the EPECTM Project with major funding provided by NCI, with supplemental funding provided by the Lance Armstrong Foundation.
EPEC - Oncology Education in Palliative and End-of-life Care - Oncology Module 5: Survivorship
Objectives • Define cancer survivor. • Identify challenges and barriers for survivors. • Utilize practical interventions to support survivors. • Employ strategies for self-care.
Importance of cancer survivorship • Increasing numbers • Cancer as chronic disease • Public knowledge/involvement
Definition ofcancer survivor • “Any person living with cancer anytime” • National Coalition for Cancer Survivorship
Specific concerns ofcancer survivors . . . • Health insurance • Job loss • Nonmedical costs • Lack of mental health providers
. . . Specific concerns • Emotional concerns • Fear of abandonment • Physical symptoms
Quality of survival • Symptom control • Respectful care • Maintenance of social role • Contributing to society
Physicians and theemotional environment • Emotional connectedness • “Cheerleader” role • Guilt • Reimbursement issues
Survivor goals – diagnosis • Acute disequilibrium • Find “best” care • Physician role – focus on clear plan
Survivor goals – treatment • Complete treatment • Maintain independence • Physician role • Prevent/treat side effects • Provide information
Survivor goals – remission • Redefine “normal” • Psychosocial rehabilitation • Reinvest in life • Physician role • Manage fear of recurrence
Survivor goals – recurrence/advancing cancer • Maximize sense of control • Realign relationships • Utilize palliative care/hospice • Physician role • Clarify plan • Communicate honestly
Recurrent / advancing disease . . . • Physician communication • Listen • Tell patients and families what they want to know • “There’s always something to do” • No abandonment
. . . Recurrent / advancing disease • Physician communication • Tell the truth • Manage symptoms • Involve patient/family in decision process • Present new advances • Refer as appropriate
Survivor goals –end of life • Maintain dignity • Make community contribution • Control emotions • Find meaning • Obtain best care
Summary Use comprehensive assessment and pathophysiology-based therapy to treat the cause and improve the cancer experience.