1 / 16

Bermuda Triangle

Magic Triangles………. Bermuda Triangle. Commission on European Affairs Report on Activities (July 2006). Rules of procedures. Finances. European Congress ECE. Regional Organisation. Education. Quality - Availability of Care / AEDs. Scientific cooperation / Research. Communication.

noelle
Download Presentation

Bermuda Triangle

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Magic Triangles……… Bermuda Triangle

  2. Commission on European Affairs Report on Activities (July 2006) Rules of procedures Finances European Congress ECE Regional Organisation Education Quality - Availability of Care / AEDs Scientific cooperation / Research Communication

  3. European Congresses on Epileptology ECE • Oporto 1994 • Den Hague 1996 • Warsaw 1998 • Florence 2000 • Madrid 2002 • Vienna 2004 • Helsinki 2006 • Berlin 2008 • ?? 2010 • ?????? 2012 Post Congress Satellite in St Petersburg Co-organisation Germany / Israel in Berlin 2008

  4. Travel Bursaries for ECE: 2002-2004-2006 • # 50 Travel bursaries per ECE • Criteria: • Working in a European Institution • Under 40 years • First author of an accepted abstract • Includes: • -Complimentary Registration • -3 Nights Accommodation • -€250 towards travel

  5. Education: CEA Action Plan CEA Residential Courses Teaching Courses Distant Education Trainer’s courses Lusophone edu Francophone edu Edu for PAMs Etc…..

  6. Education: CEA Action Plan CEA Residential Courses Teaching Courses

  7. Quality / Availability of Care / AEDs • Discussion group with the European Medecine Agency • Rare Diseases Task Force in liaison with the EU Commission / Orphan Drug Programmes • Status Epilepticus: • Workshop on European Guidelines for the treatment of SE (London, April 2007 ) • EFNS Main Session in Brussels (August 2007) In Liaison with the ILAE Commission on Therapeutic Strategies

  8. Collaboration with the Rare Diseases Task Force in liaison with the EU Commission • Identifying the epileptic disorders that fulfill the definition of rare diseases • Ex: epileptic encephalopathies, PME, Rasmussen, etc • Developing the concept of Centres of Reference • Communication actions (website, database ORPHANET, Journal or Rare diseases) • Optimizing the continuity of care between paediatrics and adult neurology units • Promoting innovative therapies / Orphan drugs

  9. Tuesday July 4th 07.30-09.00 Orphan Drug Symposium • The concept of rare or orphan diseases in epilepsy Baulac, M (France) • Review of the EU orphan drug program - applicability to epileptic diseasesS. del Signore (EMEA Representative) • Overview of brivaracetam for progressive myoclonus epilepsies (UCB)von Rosenstiel, P (Belgium) • Overview of stiripentol for SMEI (Biocodex)Chiron, C (France)

  10. Regional Organisation • Stimulate Integration • Support collaborative projects, regional • or sub-regional initiatives • Taking into account the localeconomical • realities and the needs of the countries • with limited resources + Kyrg

  11. + Kyrg

  12. Scientific Cooperation / Research • Supportive role in large scale collaborative studies • EURAP (pregnancy registry) • EU calls for Research (FP 6th, FP 7th) • Participation to the FONDE study (EUCARE) • AEDs Trials? • Genetics, Epidemiology, Tissue banks • Fellowships?

  13. Communication • ILAE website • EUCARE (Action at the EU Parliament) • Global Campaign • Societies (EFNS, EPNS) • IBE Communication with the Chapters Reinforce the role of: the European Advisory Concil (EAC) the Chapter Convention

  14. CEA Bursaries for Chapter Conventions • Initiated in Vienna in 2004 to ensure participation of Chapter Delegates in the European Chapter Convention • 16 people from Kazakhstan, Croatia, Turkey, Ukraine, Macedonia, Hungary, Yugoslavia, Russia, Azerbaijan, Armenia, Georgia, Bulgaria, Moldova, Slovenia, Latvia, Lithuania, Estonia assisted • Programme expanded to assist Chapters on 2 levels for the 7th ECE in Helsinki: • Special bursary offered to one representative of 22 Central & Eastern European Chapters (based on GNP figures of the World Bank) – comprising registration, accommodation & travel support • One other registered delegate was offered accommodation support for 1 night in order to facilitate attendance at the Chapter Convention

  15. Commission on European Affairs • Milda Endziniene (Lithuania) • Alla Guekht, EAC Chair,(Russia) • Cigdem Ozkara, CEASecretary, (Turkey) • Bettina Schmitz (Germany) • Michel Baulac, CEAChair, (France) • Meir Bialer, CEATreasurer, (Israel) • Peter Halasz (Hungary) • Svein Johannessen, EAC secretary, (Norway) • Frederico Vigevano (Italy) Peter Wolf EC Members • Working Groups • Education: M Endziniene, M Bialer, B Schmitz, A Guekht, P Halasz, P Wolf • Rules: F Vigevano, M Bialer, S Johannessen • Relationships with European Organisations, EMEA,..: M Baulac, M Bialer, A Guekht • Cooperation / Regional initiatives: A Guekht, SJohannessen, M Endziniene, MBialer • Scientific collaboration / Research: P Halasz, COzkara, FVigevano • Communication, Global Campaign: C Ozkara, S Johannessen

  16. IOC / SAC Written rules, statutes Evaluation (Bursaries, fellowships) Centralized Scientific cooperation Education (liaison ILAE commission) Edu courses EMEA / CEA Regional Inter reg.initiatives …….. BUDGET CEA BUDGET Newsletter EAC Proposals Evaluations of needs Motivation of Chapters Conventions Surveys Others… Sub regional organisation? Chapters

More Related