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CANCER CAREGIVERS-THE DIFFERENCE

CANCER CAREGIVERS-THE DIFFERENCE. Peggy Anthony, RN, MHS,CNOR Patient Advocate Committee. Cancer Caregivers-The Difference. Estimated 2.8 million individuals in the US are providing informal care for an adult family member or friend with cancer

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CANCER CAREGIVERS-THE DIFFERENCE

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  1. CANCER CAREGIVERS-THE DIFFERENCE Peggy Anthony, RN, MHS,CNOR Patient Advocate Committee

  2. Cancer Caregivers-The Difference • Estimated 2.8 million individuals in the US are providing informal care for an adult family member or friend with cancer • Cancer caregivers devote more hours per week-32.9 hours vs. 23.9 hours for non cancer caregivers • 62% of cancer caregivers vs.49% of non cancer caregivers were more likely to communicate with healthcare professionals and to advocate on behalf of the patient

  3. Cancer Caregivers-The Difference • Cancer caregivers were nearly twice as likely to report needing help and information with end of life decision-making • Cancer caregivers are called on to assist with complex treatment decisions soon after diagnosis • Cancer caregivers experience high levels of emotional stress • Cancer caregivers are asked to perform tasks that they may or may not be adequately prepared to do

  4. Cancer Caregivers-The Difference • Cancer caregivers are vital to cancer patients’ well-being • Fewer resources are directed to help cancer caregivers • Cancer caregivers and cancer patients are interdependent • New research shows that more is needed to better understand at what point providers and clinicians need to intervene to assess the well-being of caregivers

  5. The Caregiver’s Perspective • Open communication/truth-telling • Little attention has been paid to caregivers’ specific informational needs • Caregivers are expected to enter the new treatment setting with the patient and actively participate from the moment of diagnosis

  6. Expectations for Caregivers • Assist with decision-making for treatment • Integrate new medical information • Learn new illness-related terminology • Adapt to a new setting • Find the time to accompany the patient to appointments

  7. Interacting with Caregivers • Cultural assessment/needs • Offering trials on the first visit • Clear treatment information is key • Active listening to reduce caregiver burden • Frequent communication

  8. Questions???

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