180 likes | 352 Views
The. EPEC-O. TM. Education in Palliative and End-of-life Care - Oncology. Project. The EPEC-O Curriculum is produced by the EPEC TM Project with major funding provided by NCI, with supplemental funding provided by the Lance Armstrong Foundation.
E N D
The EPEC-O TM Education in Palliative and End-of-life Care - Oncology Project The EPEC-O Curriculum is produced by the EPECTM Project with major funding provided by NCI, with supplemental funding provided by the Lance Armstrong Foundation.
EPEC - Oncology Education in Palliative and End-of-life Care - Oncology Module 5 Survivorship
Objectives • Define cancer survivor • Identify challenges and barriers for survivors • Utilize practical interventions to support survivors • Employ strategies for self care
Importance of cancer survivorship • numbers • Cancer as chronic disease • Public knowledge/involvement
Definition ofcancer survivor • ‘Any person living with cancer anytime’ - National Coalition for Cancer Survivorship
Specific concerns ofcancer survivors . . . • Health insurance • Job loss • Non-medical costs • Lack of mental health providers
. . . Specific concerns • Emotional concerns • Fear of abandonment • Physical symptoms
Quality of survivor • Symptom control • Respectful care • Maintenance of social role • Contributing to society
Physicians and theemotional environment • Emotional connectedness • ‘Cheerleader’ role • Guilt • Reimbursement issues
Survivor goals – diagnosis • Acute disequilibrium • Find ‘best’ care • MD role – focus on clear plan
Survivor goals – treatment • Complete treatment • Maintain independence • MD role • Prevent/treat side effects • Provide information
Survivor goals – remission • Redefine ‘normal’ • Psychosocial rehabilitation • Re-invest in life • MD role – management fear of recurrence
Survivor goals – recurrence/advancing cancer • Maximize sense of control • Realignment of relationships • Palliative care/hospice • MD role • Clarify plan • Honest communication
Recurrent / advancing disease . . . • Physician communication • Listen • Tell patients and families what they want to know • ‘There’s always something to do’ • No abandonment
. . . Recurrent / advancing disease • Physician communication • Truth • Symptom management • Involve patient/family in decision process • Present new advances • Refer as appropriate
Survivor goals –end-of-life • Dignity • Community contribution • Control emotions • Find meaning • Best care