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Clinical Task Force Report ADC Directors’ Meeting October 18, 2003 San Francisco

Clinical Task Force Report ADC Directors’ Meeting October 18, 2003 San Francisco. John C. Morris, MD Friedman Distinguished Professor of Neurology. Review. Principle NIA mandate Goals View all ADCs as one database Allow many research questions to be addressed Promote collaborative studies

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Clinical Task Force Report ADC Directors’ Meeting October 18, 2003 San Francisco

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  1. Clinical Task Force ReportADC Directors’ MeetingOctober 18, 2003San Francisco John C. Morris, MD Friedman Distinguished Professor of Neurology

  2. Review Principle • NIA mandate Goals • View all ADCs as one database • Allow many research questions to be addressed • Promote collaborative studies Collaboration requires a uniform dataset • Shared measures • Standardized administration

  3. Review • Task Force appointed by NIA (9/02) • Through 10/02 – 3/03, developed batteries of clinical and neuropsych measures • Draft batteries presented at ADC Directors’ Meeting, March 29, 2003 (Honolulu)

  4. Feedback • Minimum database not minimal • Will interfere with current batteries in use at individual ADCs • Burden/effort to incorporate • Not all controls have informants • A single battery will not optimally address all subject groups • Not hypothesis driven

  5. Consensus A state of mutual agreement among members of a group where all legitimate concerns of individuals have been addressed to the satisfaction of the group (Saint & Lawson, 1994) • Agreement means unity (not unanimity) • Each person has the opportunity to express concerns that are understood and considered by group members • Trust • Focus on facts • Commitment to the group above self interests

  6. Task Force Plans • Survey all Clinical Cores on clinical and neuropsych batteries for UDS • Assimilate responses and comments, modify batteries as indicated • Distribute draft batteries to ADCs for “final” comment • Present batteries for approval at ADC Directors’ Meeting, 4/04, San Francisco • With NACC, develop Manual of Operations for adopted batteries

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