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Contents. Wales Welsh Assembly Government and the Voluntary Sector- NGO’s All Wales Principles Why Have an Umbrella Body? Role of LDW LDW Mission LDW Aims External Challenges Internal Challenges Features of the LDW Umbrella Building our Profile

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  1. Contents Wales Welsh Assembly Government and the Voluntary Sector- NGO’s All Wales Principles Why Have an Umbrella Body? Role of LDW LDW Mission LDW Aims External Challenges Internal Challenges Features of the LDW Umbrella Building our Profile Case Study 1: Cardiff Supported Living 2007 Case Study 2: Disabled Children Matter Wales 2008- Continuing Are we making a difference?

  2. Wales • Population- 2.9m • Long Term Illness or disability- 23% • Poverty- 1 in 4 in low income • Adults with severe learning disability; 10,800

  3. Welsh Assembly Government & the Voluntary Sector - NGOs • Voluntary Sector Scheme • Voluntary Sector Partnership Council • Compacts between Municipalities and Voluntary Sector

  4. All Wales Principles 1983 • People with learning disabilities have a right to; • An ordinary pattern of life in the community • Be treated as an individual • Additional help and support in achieving their maximum potential

  5. Why Have an Umbrella Body? Role of LDW • Balance voice of government and of parents • Voice for NGOs • Encourage development of NGOs

  6. LDW Mission “Create a Wales that values and includes every child and adult with a learning disability in Wales”

  7. LDW Aims Strengthen the • Voice, rights and status of children and young people • Voice, rights and status of adults • Ability of parents , carers and families to make a positive contribution and • Promote a range of person centred services for children and adults • Set a good example in the way that it is run

  8. External Challenges • The Cinderella • Abuse scandals in hospitals; Ely • Children and young people ‘ineducable’ • Plus • Understanding Welsh social constraints • Collaboration with Govt versus campaigning

  9. Internal Challenges • ‘Cradle to grave remit’ • Picking priorities • Picking issues where we can win • Recruiting and retaining staff

  10. Features of the LDW Umbrella • Governance and election processes • Member consultation • Facilitator and coordinator

  11. Building our profile • Professionally presented materials and events • Membership of National Assembly lobbying representative association; Public Affairs Cymru • Being useful to govt: win/win • Attendance at all political party annual conferences • Using politicians • Developing contacts in the media

  12. Case Study 1: Cardiff Supported Living 2007 • All services re-tendered • Partnership formed • Judicial review • ‘Won battle but lost war’ • Ethical issues

  13. Case Study 2: Disabled Children Matter Wales 2008- Continuing • Poor patchy services • Investment in England • Partnership formed • Political activity • Being ‘sucked in’ • Some achievements

  14. Are we making a difference?

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