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Enabling the Public and Partners: Delivering the Message of TB

Enabling the Public and Partners: Delivering the Message of TB. Nuala Moore American Thoracic Society John Bernardo Pulmonary Center Boston University School of Medicine September 18, 2012. Objectives. Upon completion of this presentation, you will be able to:

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Enabling the Public and Partners: Delivering the Message of TB

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  1. Enabling the Public and Partners:Delivering the Message of TB Nuala Moore American Thoracic Society John Bernardo Pulmonary Center Boston University School of Medicine September 18, 2012

  2. Objectives • Upon completion of this presentation, you will be able to: • Explain the significance of presenting TB data effectively; and • Describe how educating the public and partners about TB can advance the goal of TB elimination

  3. Your Audience • The Public • Communities (groups) at-risk • The population at-large • Health Providers • Direct care • Public Health • Policy Makers • Jurisdictional, national We ALL are partners

  4. The Public: Communities • Understand priorities and needs of your people • Where does your message fit? • How do people get health information? • What medium is best for communication? • Whom do they trust? • Develop credibility • Introduce your message

  5. Personal Barriers to TB Prevention and Treatment • Knowledge/beliefs about TB infection, prevention, disease, transmission • Perceived consequences about TB and its prevention or treatment • Social, clinical • Attitudes towards seeking treatment: Realities and conflicting priorities • Fears • Limited access to care • Loss of income - inability to work

  6. Meet Your Population • Engage community groups and events • Churches, CBO’s, health fairs … • Put a face to the message • Focus Groups • Identify barriers before you can devise strategies • Existing health beliefs; stigma • Previous history

  7. You just may develop a nose for this business! • Identify “gate-keepers” • Trust • Take advantage of preferred media: • Newspaper, TV, radio, corner market, barber shop

  8. You may be surprised at what you learn……… • “…You are the white people in the white coats…in the white building…” • “Research is when you experiment on people who cannot tell on you…” • “My skin test means that my vaccine is working.” • “How come your medicine is the right one and mine isn’t?”

  9. TB Prevention in the Homeless

  10. Communities: at-risk • The Message: • Engage your people • Develop dialog, trust • Provide access - on their terms • The Outcome: • Access to reliable information, services • Better understanding of TB • Improved Public and Personal Health

  11. Are YOU prepared for this?

  12. You just might want to be there on Friday...

  13. The Public • Perceptions about TB: TB??? What??? • Develop plan for unexpected events • Identify responsible personnel, protocol • Anticipate: “High-Profile” notifications • Maintain contacts with media: Be available • Leverage data into a positive message • Provide accurate information: The TRUTH • Maintain control • Educate: Social Media; Marketing • StopTB USA: Patient Forum • Facebook: TB Photovoice • Rachel Orudno: TB Photovoice

  14. The Public: at large • The Message: • Be pro-active • Opportunities to engage public • Anticipate needs, events • Provide reliable, timely information • Improves awareness of the disease • Reduces fears, stigmatization • The Outcome: • Recognition of Public Health, TB • Facilitates advocacy

  15. Providers: Direct Care • Competing priorities in clinical care • Poor understanding of epidemiology of TB in their population and area • Lack of information • Poor training – clinical and public health • Medical, nursing schools • Residency, fellowship programs • Lack of resources • Radiography, laboratory, outreach • They just don’t see it!

  16. Direct Care Providers • Identify providers to at-risk groups • Where do people usually get care? • Engage health care systems • Define needs, resources, expertise • Develop education programs: Competence • Base it on Evidence – be Credible!! • Adapt educational strategy to need: • Academic Detailing in ED’s, Lunch didactic or workshop, … • Be a presence • Regular inservices/updates; service evaluations • Be available !!!

  17. It always comes down to…. • EDUCATION……… • EDUCATION…….. • EDUCATION……… … and knowing where to turn when you need help!

  18. Providers: Public Health • TB is a victim of its own being • Unique in clinical and public health domains • Yet, TB Programs are being subsumed • “Program Integration” • Private Sector: “Everyone is insured” • Need to “Manage Up” • Educate Public Health decision makers • Inform and educate Legislators

  19. Public Health • Maintain visibility • Interact with collaborating programs and management to foster understanding of the unique needs of Public Health-TB: Politics • Participate in Public events • Health Promotions, World TB Day • Assure competence • Clinical, laboratory, and public health • Assure access to services • Remove barriers: social, behavioral, financial

  20. Providers and Public Health The Bottom Line: • We are the Safety Net • OUR PATIENTS’ NEEDS HAVE TO BE MET, OR …

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