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Agenda

Agenda. 1. Housekeeping 3 .  Unfinished Business: Discussion of Objective 2 A.  Programs in the Commonwealth 1 .  Prevention 2 .  Screening 3 .  Education 4 .  Support 

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Agenda

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  1. Agenda • 1. Housekeeping 3.  Unfinished Business: Discussion of Objective 2 A.  Programs in the Commonwealth 1.  Prevention 2.  Screening 3.  Education 4.  Support  • 4.  New Business: Discussion of Objective 3 A.  Make Recommendation Regarding 1.  Additional Legislation 2.  Support Programs & Resources to Meet Currently Unmet Needs 3.  How to effectuate an early diagnosis and treatment of patients • 5.  Open Discussion • 6.  Adjournment 

  2. 1. Housekeeping • Call to order • Establish quorum • Vote to accept minutes

  3. Objectives • Purpose: The special commission shall make an investigation and study to: • Establish a mechanism in order to ascertain the prevalence of pancreatic cancer in the commonwealth and the unmet needs of persons with pancreatic cancer and those of their families and collect time-of-diagnosis statistics and likely risks for pancreatic cancer; • study pancreatic cancer prevention, screening, education and support programs for in the commonwealth; and • provide recommendations for additional legislation, support programs and resources necessary to meet the unmet needs of persons with pancreatic cancer and their families and how to effectuate an early diagnosis and treatment for pancreatic cancer patients.

  4. 2. Unfinished Business - Discussion of Objective 2 • 2. Study pancreatic cancer prevention, screening, education and support programs for in the commonwealth What programs/resources exist in MA for the following:Prevention – ?Screening – high risk screening programs (familial, genetic) ?Education – patient organizations, online resources, hospital resources ? Support- patient organizations, online resources, hospital resources ?

  5. Next Steps for Objective #2 • Based on preferences, working groups are listed below: 1. Decide on a group leader 2. Research what’s currently being done in MA, if anything, and research best practices in other states (perhaps) or nationally? 3. Prepare presentation with preliminary findings for June 27 meeting, group discussion 4. Based on group discussion, present proposed legislation on July 30 (or Aug 27) meeting

  6. Upcoming Meetings at One Ashburton Place June 27 (Thursday) 3-5pm @ Charles River Conference Room, 10th Floor July 30 (Tuesday) 3-5pm @ Conference Room 1, 21st Floor August 27 (Tuesday) 3-5pm @ Conference Room 1, 21st Floor

  7. Open Discussion

  8. Adjournment

  9. Notes from last meeting 3. New Business- Discussion of Objective 2 • Programs in the Commonwealth • Do any currently exist? Mandatory genetic testing for anyone diagnosed with pancreatic cancer • Linked to improved survival d/t targeted therapies perioperatively • https://ascopubs.org/doi/10.1200/PO.18.00271 • Prevention/ High-risk screening • Hospitals in MA with high-risk screening programs • Education • PCP awareness and education – ? Mandatory CME for pancreatic cancer • Signs and symptoms, genetic testing/counselor • Support 

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