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Washington Group on Disability Statistics: extended sets

This presentation discusses the objectives and purpose of the Washington Group on Disability Statistics in developing extended sets of disability measures for international comparability and monitoring functioning and disability in the population. It also includes information on the content of the extended sets, testing questions related to the proposed sets, and the mapping of items to the International Classification of Functioning, Disability and Health (ICF).

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Washington Group on Disability Statistics: extended sets

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  1. Washington Group on Disability Statistics: extended sets Marijke W. de Kleijn – de Vrankrijker WHO-FIC Collaborating Centre The Netherlands WG 5 Rio September 2005 Marijke de Kleijn

  2. Outline • Objectives of WG and task of group 3 • Purpose of short set and extended sets • Content of extended set 1 and 2 related to short set • Content of proposed set 1 • Testing questions related to proposed set 1 • Content of extended set 2 WG 5 Rio September 2005 Marijke de Kleijn

  3. WG objectives • Develop a small set/s of general disability measures • Recommend extended set/s of items to measure disability as components of population surveys • Address methodological issues associated with disability measurement WG 5 Rio September 2005 Marijke de Kleijn

  4. Purpose short set • Purpose for international comparability of disability measures/data • Highest priority given to assessing equalization of opportunities • Partially fulfills purpose of monitoring limitations in functioning in the population WG 5 Rio September 2005 Marijke de Kleijn

  5. Purpose extended sets • Should be same as short set • International comparability • Equalization of opportunities • Monitoring functioning and disability in population • This means inclusion of all ICF components • Body function/structure, impairments • Activity, limitations • Participation, restrictions • Environmental factors, barriers/facilitators WG 5 Rio September 2005 Marijke de Kleijn

  6. Short set Response categories: No, some, a lot, cannot do at all • Do you have difficulty seeing even if wearing glasses? • Do you have difficulty hearing even if using a hearing aid? • Do you have difficulty walking or climbing steps? • Do you have difficulty remembering or concentrating? • Do you have difficulty with (self-care such as) washing all over or dressing? • Because of a physical, mental, or emotional health condition, do you have difficulty communicating (for example understanding others or others understanding you? WG 5 Rio September 2005 Marijke de Kleijn

  7. Content of extended sets • Bangkok meeting: • Set 1: • functions and basic activities • related to current 6 domains of short set + additional functions and basic activities • Set 2: • other activities, • participation and • environment WG 5 Rio September 2005 Marijke de Kleijn

  8. Short sets vs extended sets WG 5 Rio September 2005 Marijke de Kleijn

  9. Testing of short set • Use of extended set(s) • Recommended to use existing instruments = first extended set? WG 5 Rio September 2005 Marijke de Kleijn

  10. First extended set First proposal to group 3: • WHS-8 • WHO-DAS-12 WG 5 Rio September 2005 Marijke de Kleijn

  11. First extended set • After comments from group members, proposal: • WHS-17 • WHO-DAS-12 • Speech question • Total 30 questions WG 5 Rio September 2005 Marijke de Kleijn

  12. WHS-17 items • Sleep • Feeling sad • Anxiety • Seeing/recognizing a person • Seeing/recognizing object, reading • Hearing someone • Hearing conversation • Aches/pain • Bodily discomfort WG 5 Rio September 2005 Marijke de Kleijn

  13. WHS-17 items (2) • Shortness of breath at rest • Shortness of breath mild exercise • Coughing • Appearance deformed • Skin defects • Defecation • Urinating • Using hands/fingers WG 5 Rio September 2005 Marijke de Kleijn

  14. WHO-DAS-12 • Concentrating doing • Emotially affected • Learning new tasks • Standing • Walking long distance • Washing whole body WG 5 Rio September 2005 Marijke de Kleijn

  15. WHO-DAS-12 items (2) • Getting dressed • Household responsibilities • Dealing with people • Friendship • Day-to-day activities (work/school) • Community activities WG 5 Rio September 2005 Marijke de Kleijn

  16. UNESCAP pilot studies • Pilot studies UNESCAP region • We have to use the experiences from those pilots • Questionnaire including: • WG short set • WHS-17 • WHO-DAS-36 • 4 questions on met/unmet needs for assistance WG 5 Rio September 2005 Marijke de Kleijn

  17. Testing short set • Group 2 selected questions for testing the short set from: • WHS • WHO-DAS • SF-36 mental component • Total 27 questions WG 5 Rio September 2005 Marijke de Kleijn

  18. Items mapped to ICF • Short set • WHS-8 • WHS-17 • WHO-DAS-12 • Eurostat health module • Test questions • Mapped to ICF see matrix WG 5 Rio September 2005 Marijke de Kleijn

  19. Second extended set Based on analysis of existing national survey questionnaires • Common questions/areas and missing areas compared to ICF • Next presentation Margie Schneider and Marijke de Kleijn WG 5 Rio September 2005 Marijke de Kleijn

  20. Testing general set • Testing general set 2005 • Including extended questions (which?) WG 5 Rio September 2005 Marijke de Kleijn

  21. Dank voor uw aandacht Marijke.de.kleijn@rivm.nl www.rivm.nl/who-fic WG 5 Rio September 2005 Marijke de Kleijn

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