1 / 65

Building Collaborative Networks to Help Family Caregivers in Texas

Building Collaborative Networks to Help Family Caregivers in Texas . Sharon Lewis, RN, PhD, FAAN Denise Miner-Williams, RN, PhD, CHPN University of Texas Health Science Center at San Antonio. Objectives.

patty
Download Presentation

Building Collaborative Networks to Help Family Caregivers in Texas

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Building Collaborative Networks to Help Family Caregivers in Texas

  2. Sharon Lewis, RN, PhD, FAAN Denise Miner-Williams, RN, PhD, CHPN University of Texas Health Science Center at San Antonio

  3. Objectives • Describe the purpose of the Community Stress-Busting Program for Family Caregivers (CSBP). • Describe the dissemination and collaborative networking involved in the CSBP. • Discuss the effectiveness of the dissemination of the CSBP in Texas.

  4. Family Caregivers in Texas

  5. Costs of Caregiving • Family caregivers perform incredibly valuable service • At tremendous personal costs • Emotional • Physical • Social • Financial

  6. Costs of CaregivingEmotional • Family relationships • Change when chronic disease enters family • Children disappear - do not help parents • Disagreements about what care and who will provide it

  7. Costs of CaregivingPhysical • Inadequate rest and sleep • Poor eating habits • Fatigue • Delay getting treatment of personal health problems • Ineffective coping via use of drugs, alcohol, smoking

  8. Costs of CaregivingPhysical • Increased risk for • Cardiovascular problems • Stroke • Cognitive impairment • Death

  9. Costs of CaregivingSocial • Life revolves around person with the disease • Withdrawal of friends • Feelings of isolation • Give up/lose sense of self

  10. Costs of CaregivingFinancial • Many older adults do not have long-term care insurance • Financial responsibilities of their care need to be paid for by the family

  11. Costs of CaregivingBurnout • Caused by excessive and prolonged stress • Occurs when you feel overwhelmed and unable to meet demands

  12. 2002 Stress-Busting Program for Family Caregivers

  13. Stress-Busting Program for Family Caregivers • Psychoeducational support groups • 9 weeks • 1 ½ hours/week

  14. Multicomponent Focus Stress-Busting Program

  15. Session 1Introductions • Introductions to the program • Hearing the caregivers’ stories and building support

  16. Session 2Stress and Relaxation – Part 1 • General concepts of stress • Negative effects on caregiver’s physical and emotional health

  17. Principle Underlying Stress Management • You may not be able to change the stressors in your life • But you can choosehow you react or respond to them

  18. Session 3Stress and Relaxation – Part 2 • Stress related to being a caregiver • Creating a relaxation environment

  19. Session 4Grief, Loss, and Depression • Losses related to Alzheimer’s disease • Ongoing grief • Resulting depression

  20. Session 5Coping Skills • Changing family relationships • Humor • Using coping strategies

  21. Session 6Challenging Behaviors • Common behavioral problems of patient with dementia and ways to deal with them

  22. Session 7Positive Thinking • For some caregivers just thinking about the positive aspects can “reframe” their role and help it seem more manageable

  23. Session 8Taking Care of Yourself: Healthy Living • Caregivers frequently devote themselves totally to their loved one • In the process, neglect their own needs

  24. Session 8Taking Care of Yourself: Healthy Living

  25. Principle Underlying Stress Management Key to being an effective caregiver • You can’t always choose your destiny in life….. but you can choose how you cope with it

  26. Session 9Choosing a Path of Wellness • Putting it all together • Setting goals

  27. Stress Management TechniqueRelaxation Breathing • One of the simplest and most effective ways to stop the stress response is to practice relaxation or abdominal breathing

  28. Stress Management TechniqueMeditation • Easy to explain (hard to do!) • Focus exclusively on something without diversion

  29. Stress Management TechniqueMeditation • A state of • Thoughtless awareness • Profound, deep peace that occurs when the mind is calm and silent, yet completely alert

  30. Stress Management TechniqueImagery • Use of one’s mind to generate images that have a calming effect on the body

  31. Stress Management TechniqueJournaling • Allows an individual to express self in writing • Ask caregivers to write about the positive aspects of caregiving

  32. Stress Management TechniqueArt • Allows a person to nonverbally express and communicate feelings, emotions, and thoughts

  33. Stress Management TechniqueMassage • Works well for relaxation of caregiver • Hand massage also helps dementia patients who are agitated

  34. Stress Management TechniqueMusic • Music can help achieve a relaxed state

  35. Stress Management TechniqueAromatherapy • Use of essential oils for the beneficial effects on the mind, body, and spirit

  36. Outcomes of Stress-Busting Program “I was at a very low point in my life. The program saved me from going into a deep depression….it saved my life.”

  37. 2010 Community Stress-Busting Program for Family Caregivers • To disseminate program • Adapt the Stress-Busting Program (SBP) to a “lay leader” model delivered in community settings • Funded by the Administration on Aging

  38. Community Stress-Busting Program Goals • Uses existing community resources to disseminate SBP • Serve many more family caregivers

  39. Community Stress-Busting ProgramCollaborative Effort • University of Texas Health Science Center- San Antonio • WellMed Charitable Foundation • Alzheimer’s Association • Area Agencies on Aging in the Coastal Bend and Capital Area • South Texas Veterans Health Care System • Texas Department of Aging and Disability Services (DADS)

  40. Program Sites for CSBP Hill Country Austin San Antonio Corpus Christi Lower Rio Grande Valley (McAllen, Harlingen, Brownsville)

  41. Community Stress-Busting ProgramMaster Trainers • Responsibilities • Recruit caregiver participants • Lead groups • Train “lay leader” group facilitators • Help to provide management of project

  42. Community Stress-Busting ProgramTraining Program for Master Trainers • 2 ½ day training program focused on • Content of the CSBP • Learning about group dynamics • Implementing CSBP • Managing the project (data collection, completing forms)

  43. Community Stress-Busting ProgramGroup (Lay) Leaders • Responsibilities • Attain certification as group facilitator • Lead groups • Assist in recruiting caregiver participants

  44. Community Stress-Busting ProgramTraining Program for Group Facilitators • 2-day training program focused on • Content of the SBP • Learning about group dynamics • Implementing CSBP

  45. Community Stress-Busting ProgramProject Evaluation • Program evaluation by facilitator • Site evaluation • Session evaluation • Program evaluation by caregiver • Session evaluation • Quality-of-life questionnaires

  46. Community Stress-Busting Program Results • Master trainers - 27 active • Group (lay) leaders – 24 trained

  47. Community Stress-Busting Program Results • Groups ongoing or completed - 34 • Caregiver participants - 159

More Related