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Cancer Care Experiences and the Use of Complementary and Alternative Medicine (CAM) and Home Remedies in Nova Scotia's

Cancer Care Experiences and the Use of Complementary and Alternative Medicine (CAM) and Home Remedies in Nova Scotia's Black Community: A Pilot Study. June 6, 2006 Victor Maddalena, PhD

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Cancer Care Experiences and the Use of Complementary and Alternative Medicine (CAM) and Home Remedies in Nova Scotia's

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  1. Cancer Care Experiences and the Use of Complementary and Alternative Medicine (CAM) and Home Remedies in Nova Scotia's Black Community: A Pilot Study June 6, 2006 Victor Maddalena, PhD This research was funded by a CIHR - NET Grant: "Palliative Care in a Cross Cultural Context: A New and Emerging Team (NET) for equitable and quality cancer care for culturally diverse populations”.  

  2. Research Team Principal Investigator: Victor Maddalena, Post Doctoral Fellow, NET-CIHR Palliative Care in a Cross Cultural Context Co Investigators: • Sharon Davis-Murdoch, NS Department of Health • Dr.Josephine Etowa, Dalhousie University School of Nursing • Phyllis Marsh-Jarvis, Health Association of African Canadians • Donna Smith, Cancer Care Nova Scotia • Dr.Wanda Thomas-Bernard, School of Social Work, Dalhousie University

  3. Research Question 1. What is the experience of African Canadians with cancer at end-of-life?

  4. Research Question 2. What role, if any, do complementary and alternative medicine and home remedies play during terminal illness from cancer and end-of-life care in the Black community?

  5. Why is this topic of Interest?

  6. Nova Scotia's Black Population • African Canadians account for more than half (52%) of Nova Scotia's Visible Minorities (19,670); • 66% live in metropolitan Halifax (13,100) representing approximately 2% of all Blacks living in Canada;. • Metro Halifax has the highest proportion of Canadian-born Blacks among major urban areas in Canada; • Nova Scotia has the largest population of indigenous Blacks in Canada (Statistics Canada 2001). • Source: (Statistics Canada, 2003).

  7. African Canadians • Some of the earliest settlers in Nova Scotia • Three main groupings: • Indigenous African Nova Scotians (Refugee Blacks, Loyalist Blacks, Maroons) • Immigrants from Africa • Immigrants from Caribbean and other part of the world

  8. Past and Present • Evidence of hardship, injustice, and systemic racism • Black Learners Advisory Committee Report (1994) • Royal Commission on the Donald Marshall Jr. Prosecution (Head 1989) • Expropriation/ Forced Relocation of Residents of Africville 1964-1970

  9. Health Status • Limited research on health status of ANS • Reliance on American Research • Reduced access to health services • poorer health status • higher rates of disease • Racism is endemic

  10. Rationale for the Research • Limited research on end-of-life and cancer experiences of African Canadians • institutional or cultural barriers to accessing cancer care services • From diagnosis to death. • No research on use of CAM and home remedies • Anecdotal knowledge of use of home remedies is extensive

  11. Research Methods • Qualitative Research (Participatory model) • Case Study Approach • Four Case studies (Families) • 1 Rural 1 urban (both indigenous African Nova Scotians) • One Immigrant family from Africa • One Immigrant Family from Caribbean

  12. Research Methods • Each case study will focus on the Primary Caregiver of the decedent • Primary Caregivers will identify other significant caregivers • (Family, neighbours, health professionals, spiritual community, etc.)

  13. Framework for Data Collection and Analysis • Feminist Ethics, as the normative framework guiding this research, demands that policies and practices in society be examined to determine whether the practice in question maintains, exacerbates, or lessens existing patterns of oppression (Sherwin, 1992, 1996). • Thematic and discourse analysis of interviews

  14. Outcome of Pilot Project • The findings from this research will inform, and provide a foundation upon which, further studies can be developed to support the development of culturally appropriate cancer care to serve the needs of Nova Scotia's Black community.

  15. Questions?

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