Awakenings in Advocacy

1. Awakenings in Advocacy Leslie Grubler MA, CCC-SLP, TSHH Founding Director The United New York Early Intervention Providers and Parents as Partners (UNYEIP) www.unyeip.org UNYEIP@yahoo.com 917 355 5060

2. ad·vo·ca·cy ˈadvəkəsē/ noun public support for or recommendation of a particular cause or policy, to be “for” something. eg. "their advocacy of healthy eating. synonyms: support for, backing of, promotion of, championing of; argument for, push for

3. The USE of the Word ADVOCATE: • Jane advocates a holistic approach in teaching skills to • children with special needs. • John advocates on behalf of someone who is at risk of • being discriminated against. • Advocates for Animals is campaigning to end the • Unacceptable suffering of farmed rabbits. • An active campaigner on many issues, Ainsley is a • staunch advocate of the campaign for a fairer system of council tax. • The SLP advocates for the children on her caseload • whenever it is necessary!

4. …and how many people play ‘devil’s advocate’?

7. What DoYOU Already Advocate for in YOUR life?

8. mi familia….

11. Our greatest human resource….

14. From ASHA’s Scope of Practice for an SLP The speech-language pathologist is the professional who engages in clinical services, prevention, advocacy, education, administration, and research in the areas of communication and swallowing across the life span from infancy through geriatrics.

16. advocating for individuals and families through community awareness, health literacy, education, and training programs to promote and facilitate access to full participation in communication, including the elimination of societal, cultural, and linguistic barriers; • advising regulatory and legislative agencies on emergency responsiveness to individuals who have communication and swallowing disorders or difficulties

17. promoting and marketing professional services; • advocating at the local, state, and national levels for improved administrative and governmental policies affecting access to services for communication and swallowing; • advocating at the local, state, and national levels for funding for research; • recruiting potential speech-language pathologists into the profession; • participating actively in professional organizations to contribute to best practices in the profession.

18. Advocacy in a Nutshell

19. …caring enough to ensure that those you serve get what it is they need

20. APaletteof30+ A selection of progressive roles of the SLP

22. Love that Person… Lover of Mankind

23. Embrace the grandiosity of our profession… The Freedom Fighter • lesliegrubler 2004

24. DECLARATION of INDEPENDENCE “We hold these truths to be self-evident, that all men are created equal, that they are endowed by their Creator with certain unalienable rights, that among these are life, liberty and the pursuit of happiness.”

25. THE BILL OF RIGHTS Amendment I Congress shall make no law …abridging the freedom of speech, or of the press; or the right of the people peaceably to assemble, and to petition the government for a redress of grievances.

26. Convention on the Rights of the Child General Assembly Resolution 44/25 Of 20 November 1989 Article 13 “The Child should have the right to freedom of expression; this right shall include freedom to seek, receive and impart information and ideas of all kinds, regardless of frontiers, either orally, in writing or in print, ….or through any other media of the child’s choice.”

27. Freedom of Speech, oil on canvas, Saturday Evening Post, Feb. 20, 1943, “I suddenly remembered how Jim Edgerton had stood up in a town meeting and said something that everybody else disagreed with. But they had let him have his say. No one had shouted him down. My gosh, I thought, that's it. There it is. Freedom of Speech. I'll illustrate the Four Freedoms using my Vermont neighbors as models.”Freedon of Speech Norman Rockwell

28. The Change Agent

29. We are agents of change and have been given the charge to open doors to communication and, therefore, freedom of speech. . . .

30. The Justice Seeker

31. Stand up for what is right even if you are standing alone….

32. carpe diem!

33. If you believe it, you will see it. The Believer

34. Maintenance of Mediocrity Or Manifestation of Miracles? M.O.M. The Advocate

35. Advocacy InvolvesChoice

36. Monkey in the Middle ! ? ! What Will Be! What Should Be! STUDENT CLINICIAN ADMINISTRATION

37. What Makes Me A Good Clinician • What makes me a good clinician? • Personhood. • Education. • Training. • The opportunities afforded. • The opportunities sought. • The opportunities created. • Self-motivation and self-reliance. CLINICIAN

38. Top Down • Funding Sources • Fiscal Creativity • Agency Priorities? • Visionaries? • Alignment with • Best Practices What Will Be! ADMINISTRATION

39. Advocacy InvolvesChoice • follow a path • create a path • discover an old path

40. Builds Parent Bridges • Promotes Generalization The Informer

41. Understanding the Kubler-Ross Cycle of Grief

42. Understanding the Parent/Caregiver Perspective

43. Key Elements • Recognize family as a constant • Establish family-professional collaborations • Exchange complete and unbiased information • Honor cultural diversity • Recognize that families have different coping mechanisms and are at different stages of acceptance (Prelock et al 2003)

44. Key Elements • Recognize family as stakeholders… • Embrace that parents know their child best • Support the development of parents as advocates…families as advocates • Encourage parents to be fearless and to endure • Encourage parents to simply love their child for whoever he/she is • Demonstrate and/or model this love • Impart and embrace that the journey (with patience) can be navigated successfully

45. Remember the roots of special education legislation http://prezi.com/oj5bfbbnt9_q/mills-v-board-of-education-ca-1972/

46. And remember the role of parents in the …. The History of Special Education in the United States

47. Mentoring Parents aka bulldogs-to-be

48. Do I have the right stuff to advocate? Do I have the right stuff to advocate?

50. When Should I Do It……