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Placement and Transition

Placement and Transition. Bruns, Campbell & Springer Tracking Rare Incidence Syndromes project Trisomy 9 Get together Northbrook, IL June 2013. Tracking Rare Incidence Syndromes (TRIS) project.

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Placement and Transition

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  1. Placement and Transition Bruns, Campbell & Springer Tracking Rare Incidence Syndromes project Trisomy 9 Get together Northbrook, IL June 2013

  2. Tracking Rare Incidence Syndromes (TRIS) project The Tracking Rare Incidence Syndromes (TRIS) project seeks to increase the knowledge base on rare incidence trisomy conditions, and to make this information available to families and interested educational, medical and therapeutic professionals. Children and adults diagnosed with t18, t13, t9 and other rare syndromes possess unique medical, health and developmental needs which require providing information and support to those involved in their daily, educational and medical care. (http://web.coehs.siu.edu/Grants/TRIS/)

  3. T9 School Placement Data Tracking Rare Incidence Syndromes project TRIS Full Survey data

  4. Background Information • 21 participants completed initial TRIS Survey (baseline data) and a minimum of one TRIS Follow-up Survey; data available for 18 children: • 8 with t9 mosaic • 5 with partial t9 partial • 2 with t9 inversion • 3 with t9 partial and an additional diagnosis • 1 with t9 partial and t11q mosaic • 1 with t9 partial and t10 mosaic • 1 with t9 partial and t22q mosaic

  5. Educational Placement At Initial Survey At Most Recent Follow-up Majority of children started in a General Education classroom. Most children were placed in self-contained classrooms at age 15 (high school). All children were placed in a neighborhood school before the age of 12. Students aged 21+ were attending school programs. Majority of children received services in a Special Education classroom. All children were placed in a neighborhood school before the age of 12. Several children aged out of special education services

  6. Transition resources Tracking Rare Incidence Syndromes project

  7. Family systems theory • Turnbull and Turnbull developed the family systems theory relatedto families with a member with a disability • Families change over time • Families make adjustments at predictable times (e.g., transitions) • Focus is on family support • Family is viewed as an integrated and interdependent system

  8. Family systems theory continued • Family life cycle is discussed within the family systems theory and includes planned and “off-time” transitions • Planned transitions include first day of kindergarten • “Off-time” transitions include fitting for first wheelchair and new diagnosis (e.g., seizure disorder)

  9. Assistance for transitions: Person-centered planning • Meaningful Access Participation & Support (MAPS) (http://www.inclusive-solutions.com/map.asp) andPlanning Alternative Futures with Hope (PATH) (http://www.inclusive-solutions.com/path.asp) • Both MAPS and PATH create a shared vision for an individual’s future education, participation in the community etc.; no assumptions made based on functioning level; input from parents and family members, professionals and other involved individuals such as a respite worker or family pastor

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