1 / 21

Ann T. Cutler, MD acutler@uic.edu Department of Disability and Human Development College of Applied Health Sciences Univ

Supports and Gaps for Children with Autism Disability Rights Consortium 7-22-09. Ann T. Cutler, MD acutler@uic.edu Department of Disability and Human Development College of Applied Health Sciences University of Illinois at Chicago. Disclosure Information.

rachel
Download Presentation

Ann T. Cutler, MD acutler@uic.edu Department of Disability and Human Development College of Applied Health Sciences Univ

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Supports and Gaps for Children with Autism Disability Rights Consortium 7-22-09 Ann T. Cutler, MD acutler@uic.edu Department of Disability and Human Development College of Applied Health Sciences University of Illinois at Chicago

  2. Disclosure Information • I have no relevant financial relationships with the manufacturer(s) of any commercial product(s) and/or provider of commercial services discussed in this presentation. • I do not intend to discuss commercial products or services and unapproved/investigative uses of a commercial product/device in my presentation

  3. Building Capacity Screening Diagnostic Services Treatment Family Support

  4. The Combating Autism Act • Authorizes approximately $920 million for expanded activities related to autism spectrum disorders over a five-year period (FY2007-FY 2011). • Activities covered under the act include screening, surveillance, education, early intervention, prompt referrals for treatment and services, and research. • For more information: http://mchb.hrsa.gov/autism/default.htm

  5. Combating Autism Act Initiative Programs • Leadership Education in Neuro-developmental & Related Disorders (LEND) Training programs • Developmental-Behavioral Pediatrics Training Grants • Resource Centers • State Demonstration Grants • Research Networks and Nodes

  6. What is LEND? LeadershipEducation inNeurodevelopmentalDisabilities • Overarching Goal:Provide continuing education, consultation and technical assistance geared to the needs of MCH Health professionals, policymakers and families • Funded by Maternal and Child Health Bureau (MCH) • Based on the Combating Autism Act • A national network of LENDs (www.aucd.org)

  7. Illinois LEND: A Partnership • University of Illinois at Chicago: • IDHD Family Clinics and Units • UIC Autism Center of Excellence • The Autism Program (TAP) of Illinois • Children’s Mental Health and Developmental Neuroscience Center • University of Chicago: Developmental and Behavioral Pediatrics • Rush University: Speech and Hearing • Collaboration with community agencies and Illinois Title Five Maternal and Child Health (MCH) Programs

  8. LEND Disciplines • Child Psychiatry • Disability Studies • Family • Nursing • Nutrition • Occupational Therapy • Pediatrics • Physical Therapy • Psychology • Public Health • Social Work • Speech and Hearing

  9. What’s Happening In Medicine???

  10. American Academy of Pediatrics Policy • It is important that pediatricians be able to recognize the signs and symptoms of autism spectrum disorders and have a strategy for assessing them systematically. Pediatricians also must be aware of local resources that can assist in the diagnosis of and the management of ASD. • Pediatrics Vol. 120 No. 5 Nov. 2007

  11. Screening and Surveillance Algorithm

  12. Language Delay:Absolute indications for immediate evaluationAmerican Academy of Child Neurology 2006

  13. Illinois Chapter of AAP (ICAAP): Enhancing Developmentally Oriented Primary Care

  14. EDOPC at a Glance Goals • Improve delivery and financing of preventive health and developmental services for children birth to three • Build on existing programs to develop a range of strategies for primary care settings

  15. EDOPC at a Glance • Collaborative project • Advocate Health Care Healthy Steps Program • Illinois Chapter, American Academy of Pediatrics (ICAAP) • Illinois Academy of Family Physicians (IAFP) • 2005 through 2010 • Multiple funders

  16. EDOPC at a Glance:Who Has Been Trained

  17. EDOPC Tools • Training • Academic detailing in the practice for all staff • Peer-to-peer faculty • Resource Toolkits • Technical Assistance • Monthly conference calls • Face to face consulting • Phone consultation • EDOPC Web site

  18. ICAAP/TAP Collaboration • Primary care physician training on early identification; especially in rural areas • Establishing a network of interdisciplinary diagnostic teams • Establishing autism medical homes for family partnerships regarding coordination of supports • Transition • Funding!!

  19. Autism Advocacy Initiative • A network of IL physicians to represent physicians at the local and state level on issues related to autism • The primary mission is to advocate for evidence based treatments • To reach out and provide support to adult medical providers

  20. Access to Treatment for All • Current evidence-based practices for autism: • Applied Behavior Analysis (ABA)1, [i], [ii] • Discrete Trial Teaching1 • Pivotal Response Training1 • Learning Experiences: An Alternative Program for Preschoolers and Parents (LEAP)1 • Treatments Considered “Promising Practices”: • Picture Exchange Communication System (PECS)Incidental TeachingStructured Teaching (TEACHH)Augmentative/Alternative CommunicationAssistive TechnologyJoint Action RoutinesCognitive Behavioral ModificationCognitive Learning Strategies Social StoriesSocial Decision-Making StrategiesSensory Integration [i] Rogers, S. J. & Vismara, L. A. (2008). Journal of Clinical Child & Adolescent Behaviors, 37 (1), 8-38. • [ii] New York State Department of Public Health Early Intervention Program (2005). Report of the Recommendations: Autism/Pervasive Developmental Disorders. New York: Department of Public Health.

More Related