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One Vision, One Voice: Palliative Care Community of Practice. The Team. Dr. Karen L. Spencer, Ed.D Purposeful Development Associates Dr. Cynda Rushton, DNSc, RN Institute for Johns Hopkins Nursing Susan Hanley Dell Professional Services. Palliative Care.
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The Team • Dr. Karen L. Spencer, Ed.D Purposeful Development Associates • Dr. Cynda Rushton, DNSc, RN Institute for Johns Hopkins Nursing • Susan Hanley Dell Professional Services
Palliative Care • “A model for the relief of suffering and the improvement of quality of life across the spectrum of illness” • Applies to infants, children and adults with chronic and life threatening conditions
Where We Are • Palliative and curative care challenges us to move beyond the “serial processing” of curative care then palliative care
Where we want to be: Integration Norms of practice that provide for the “parallel processing” of curative and palliative care.
Where we want to be:Culture Change • Decision making that spans an interdisciplinary team • Includes patients and families • Focuses on cure AND quality of life
The Nursing Leadership Academy for End-Of-Life Care The Approach • Educate nurse leaders in strategies of planning and managing organizational change and advocacy initiatives related to palliative & end-of-life care • Create a system of support, networking, and mentoring integrate palliative care into all specialties of nursing practice
The Nursing Leadership Academy for End-Of-Life Care Impact • 44 national nursing specialty organizations • More than 600,000 nurses represented by Academy participants
WHAT TO DO WHEN THE FUNDING DRIES UP? COMMUNITYOF PRACTICE
Technology Enables Community • Find and make connections with one another • Share best practices • Solve problems • Create enhanced meaning from their work • Provide support for the care giver • Find key resources
REWARDS • THE WORK CONTINUES • MORE SELF RESPONSIBILITY • SENSE OF ACCOMPLISHMENT
CHALLENGES • GETTING PEOPLE ON LINE • CONTRIBUTIONS TO KEEP SITE LIVELY • FACE TO FACE TIME • FUNDING
Technology Platform • Windows Server 2003 • Windows SharePoint Services • SQL Server 2000 Standard
(Public website) Contact Information Dr. Karen L. Spencer 410 730 8605 PurposefulD@aol.com