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Primary Care for the Pediatric Cancer Survivor. Ann Marie Lam, M.D. Emory Family Medicine October 20 th , 2011. Objectives. Assess provider knowledge/proficiency on primary care for the pediatric cancer survivor Review current guidelines for pediatric cancer survivor care
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Primary Care for the Pediatric Cancer Survivor Ann Marie Lam, M.D. Emory Family Medicine October 20th, 2011
Objectives • Assess provider knowledge/proficiency on primary care for the pediatric cancer survivor • Review current guidelines for pediatric cancer survivor care • Gain competence in providing primary care for the pediatric survivor
Background • Most adult survivors of childhood cancer receive their care from primary care physicians • There is a lack of knowledge among primary care physicians on appropriate long term follow-up and screening • Care for adult survivors of childhood cancer (survivorship care) includes: • Surveillance for secondary cancers and/or recurrence of primary cancer • Early recognition of late effects of therapy • Psychosocial needs • Transition of care
Survival rates • Improved therapies have led to increased survival rates (20% in 1954 to 83% in 2006) • Survival rates for adults < 50 years old who had the following childhood malignancies: • Brain tumor: 60% • Leukemia: 72% • Non-Hodgkin lymphoma: 80% • Hodgkin disease: 91%
Childhood cancer survivors are at risk for: • Endocrinopathies • Obesity, diabetes, metabolic syndrome • Neurologic effects on memory, learning, attention • Hearing loss, dry eyes/mouth, dental problems • Cardiomyopathy • Infertility • Thyroid disorders • Muscle weakness, leg length discrepancy, osteoporosis • Secondary malignancy
Identifying risk for specific long-term complications • Identify type of primary cancer and organ/body location affected • Ascertain type and cumulative dose of radiation/chemotherapy and location • Know what tools to use in managing surveillance
Flowcharts • Acute lymphoblastic leukemia (ALL) • Neuroblastoma • Rhabdomyosarcoma
Barriers to transition of care • Acute care to long-term follow-up • Pediatric to adult care • Knowledge deficits (survivor) • Knowledge deficits (provider) • Psychological factors • Healthcare system gaps • Financial/insurance issues
Website/Resources • Long-term follow-up guidelines: www.survivorshipguidelines.org • Survivor link: www.cancersurvivorlink.org
References • Rose, et al. Endocrine surveillance in childhood cancer survivors. UpToDate. 2011. • Children’s Oncology Group. Establishing and enhancing services for childhood cancer survivors: Long-term follow-up program resource guide. 2007. • Schwartz, C. Long-term survivors of childhood cancer: the late effects of therapy. The Oncologist. 1999. • Caring for Childhood Cancer Survivors. American Family Physician. May 15, 2011, 1250-1255.