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Statistics for Health

Statistics for Health. An overview. Deborah Raven, Knowledge Manager, DSAS June 2019. What we will cover today: a quick tour …. Why me? Sources Data Statistics Indicators Diabetes Keeping up-to-date. First of all. Data Coordination Board A sub-group of the Digital Delivery Board

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Statistics for Health

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  1. Statistics for Health An overview Deborah Raven, Knowledge Manager, DSAS June 2019

  2. What we will cover today: a quick tour … Why me? Sources Data Statistics Indicators Diabetes Keeping up-to-date

  3. First of all Data Coordination Board • A sub-group of the Digital Delivery Board • Delegated authority from SoS for publication under section 250 • Main governance route through which data and standards requirements are to be agreed and priorities assigned, across the entire health and social care system and all ALBs • Driver of burden reduction (current estimate £426m) • History – from Committee for Regulating Information Requirements (CRIR) in 1987, through ISB and SCCI, and ROCR and BAAS – all now under one umbrella • Data Standards Assurance Service (DSAS) supports DCB – we publish • Standards and collections • An alphabetical list of all current Data Coordination Board (DCB) and Information Standards Board (ISB) standards and collections.

  4. Main organisations DHSC NHS Digital Public Health England NHS England and NHS Improvement NICE ADASS but also: HQIP Office for National Statistics Royal Colleges Charities

  5. Administrative Sources DCB Standards and collections • An alphabetical list of all current approved national standards and collections. • Examples • Commissioning Data Sets (Inpatient and Outpatient Activity) (HES) • Cancer Outcomes and Services Data Set • Emergency Care Data Set • Maternity Services Data Set • Mental Health Services Data Set • GP data collections • National Diabetes Audit … etc etc • Our known gaps • PHE • clinical audits (HQIP) • finance and performance monitoring of “overhead” resources • Out of scope • ad hoc surveys by, e.g. RCGP, RCN, charities • patient surveys

  6. Statistics (processed data) National and official statistics - starting point – gov.uk https://www.gov.uk/search/research-and-statistics?parent=&keywords=&level_one_taxon=8124ead8-8ebc-4faf-88ad-dd5cbcc92ba8&level_two_taxon=&content_store_document_type=published_statistics&public_timestamp%5Bfrom%5D=&public_timestamp%5Bto%5D=&order=updated-newest List of all national statistics - https://www.statisticsauthority.gov.uk/osr/list-of-national-statistics/ NHS Digital - https://digital.nhs.uk/data-and-information/find-data-and-publications/statement-of-administrative-sources/a-z-of-nhs-digital-official-and-national-statistics-publications NHS England - https://www.england.nhs.uk/statistics/12-months-statistics-calendar/ GSS - https://gss.civilservice.gov.uk/user-facing-pages/health-and-care-statistics/hc-statistics-landscape/ ONS - https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare HQIP - https://www.hqip.org.uk/resources/#.XQpJbzbfOUk

  7. Data (source and processed data) • Government - https://data.gov.uk/ - access to health data published at a government/ALB level • NHS England - https://data.england.nhs.uk/ • Public Health England • https://www.gov.uk/guidance/phe-data-and-analysis-tools • https://fingertips.phe.org.uk/ • UK Data Service - https://www.ukdataservice.ac.uk/get-data/themes/health.aspx • GP Data Hub - https://digital.nhs.uk/data-and-information/data-tools-and-services/data-services/general-practice-data-hub • NHS BSA (prescription and dental data) - https://www.nhsbsa.nhs.uk/information-services • Expert commentary on data, for example - https://www.kingsfund.org.uk/blog/2019/06/new-trend-elective-hip-surgery • House of Commons – constituency data - https://commonslibrary.parliament.uk/category/local-data/local-data-social-policy/local-data-health/ • Staff survey - https://www.nhsstaffsurveys.com/Page/1032/FAQs/FAQs/ • Health Foundation – monthly comment - https://www.health.org.uk/news-and-comment/featured-content/chart-of-the-month

  8. Indicators - 1 • NHS Outcomes Framework • https://digital.nhs.uk/data-and-information/publications/clinical-indicators/nhs-outcomes-framework/current • https://app.powerbi.com/view?r=eyJrIjoiYzU0NzhhM2YtNWQxNi00MDVjLTllZjktNzQ1YWIxNzUzNTU5IiwidCI6IjUwZjYwNzFmLWJiZmUtNDAxYS04ODAzLTY3Mzc0OGU2MjllMiIsImMiOjh9 • Public Health Outcomes Framework • https://fingertips.phe.org.uk/profile/public-health-outcomes-framework • PHE Fingertips • https://publichealthmatters.blog.gov.uk/2019/06/04/whats-new-in-the-june-2019-local-health-update/ • PHE Local Health • http://www.localhealth.org.uk/#v=map15;l=en • CCG Outcomes Indicator Set • https://digital.nhs.uk/data-and-information/publications/clinical-indicators/ccg-outcomes-indicator-set/current

  9. Indicators - 2 • Quality and Outcomes Framework • https://qof.digital.nhs.uk/ • Adult Social Care Outcomes Framework • https://digital.nhs.uk/data-and-information/publications/clinical-indicators/adult-social-care-outcomes-framework-ascof/current • NHS Digital Clinical Indicators, for example • https://digital.nhs.uk/data-and-information/publications/clinical-indicators/seven-day-services/current • CQUIN • https://www.england.nhs.uk/nhs-standard-contract/cquin/cquin-19-20/ • For example: Three High Impact Actions to Prevent Hospital Falls; Community Placed PICC Lines Secured Using a SecurAcath Device

  10. Diabetes - 1 National Diabetes Audit National Diabetes Audit and Diabetes Prevention Programme (NDA-DPP) pilot study National Diabetes Foot Care Audit National Diabetes Inpatient Audit National Diabetes In-patient Audit - Harms National Diabetes Transition Audit National Paediatric Diabetes Audit National Pregnancy in Diabetes Audit Diabetic Eye Screening Data Set NHS Health Checks

  11. Diabetes - 2 Statistics • NHS Digital - https://digital.nhs.uk/data-and-information/publications/statistical/national-diabetes-audit/report-1-care-processes-and-treatment-targets-2017-18-full-report • HQIP - https://www.hqip.org.uk/resource/national-diabetes-audit-core-report-1-care-processes-and-treatment-targets/#.XQpKZTbfOUk • Diabetes UK - https://www.diabetes.org.uk/Professionals/Resources/National-Diabetes-Audit • Prescribing - https://digital.nhs.uk/data-and-information/publications/statistical/prescribing-for-diabetes/2007-08---2017-18 Other data / indicators • NHSOF - Unplanned hospitalisation for asthma, diabetes and epilepsy in under 19s • https://digital.nhs.uk/data-and-information/publications/clinical-indicators/nhs-outcomes-framework/current/domain-2-enhancing-quality-of-life-for-people-with-long-term-conditions-nof/2-3-ii-unplanned-hospitalisation-for-asthma-diabetes-and-epilepsy-in-under-19s • PHE – expenditure - https://www.gov.uk/government/publications/diabetes-outcomes-versus-expenditure-dove-in-local-populations

  12. Diabetes - 3 ONS - https://www.ons.gov.uk/peoplepopulationandcommunity/birthsdeathsandmarriages/deaths/adhocs/009869numberofsuicideswheretype1diabetesmellituswasalsomentionedonthedeathcertificatedeathsregisteredinenglandandwales2001to2017 PHE - https://fingertips.phe.org.uk/profile/diabetes-ft/data#page/0 WHO - www.euro.who.int/en/health-topics/noncommunicable-diseases/diabetes/data-and-statistics Health Survey (self reported data) - https://digital.nhs.uk/data-and-information/publications/statistical/health-survey-for-england/2017 Diabetes UK – headline data - https://www.diabetes.org.uk/resources-s3/2019-02/1362B_Facts%20and%20stats%20Update%20Jan%202019_LOW%20RES_EXTERNAL.pdf NHS - Behind the Headlines - https://www.nhs.uk/news/diabetes/no-proof-walnuts-prevent-diabetes/

  13. Other examples Mental Health - https://www.gov.uk/guidance/mental-health-data-and-analysis-a-guide-for-health-professionals https://www.mentalhealth.org.uk/statistics Sepsis - https://www.sos-insights.co.uk/ International – World Health Organization, Regional Office for Europe, http://www.euro.who.int/en/data-and-evidence WHO, https://www.who.int/news-room/fact-sheets/detail/obesity-and-overweight Canada, https://www.cihi.ca/en/access-data-and-reports

  14. Keeping up to date gov.uk - https://www.gov.uk/health-and-social-care ONS - https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare - sign up for email alerts NHS Digital – guide for journalists - https://digital.nhs.uk/binaries/content/assets/legacy/pdf/5/2/80477_nhsdigitial_guide_for_journos-2017_electronic_final.pdf Make friends – informatics staff who oversee submission of data and receive it back; clinical coders who know everything there is to know about terminologies and classifications (if you need an ICD code for searching for example) Press, for example - https://www.theguardian.com/data BBC, for example - https://www.bbc.co.uk/news/health-48600926 - was based on press release for: https://www.england.nhs.uk/statistics/statistical-work-areas/cancer-waiting-times/monthly-prov-cwt/2019-20-monthly-provider-cancer-waiting-times-statistics/provider-based-cancer-waiting-times-for-april-2019-provisional/

  15. Questions Happy to help at any time! deborah.raven@nhs.net

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