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GENNERE A Generic Epidemiological Network for Nephrology & Rheumatology. Michel SIMONET (Grenoble University) Presenters & Dr Haijin YU (Rui Jin Hospital Shanghai). GENNERE Project Background & objectives.
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GENNERE A Generic Epidemiological Network for Nephrology & Rheumatology Michel SIMONET (GrenobleUniversity) Presenters & Dr Haijin YU (Rui Jin Hospital Shanghai) ER Conference – Shanghai, Nov. 2004
GENNEREProject Background & objectives • SIMS-REIN: French national epidemiological network in Nephrology(Leader: Dr. Paul Landais) • GENNERE • Chinese needs • Genericity • Medical: Nephrology and Rheumatology • Database design + Software: reuse and adaptability • Language: Chinese, English, French … • Easy extension to other medical fields & other countries ER Conference – Shanghai, Nov. 2004
GENNEREProject achievements and perspectives • GENNERE database and software for 2 fields • Nephrology (ESRD: End-Stage Renal Disease) • Rheumatology (RA: Rhumatoid Arthritis) • User testing and validation is ongoing at Rui Jin hospital • Perspectives • Data Warehouse for epidemiological studies • Geographical Information systems • Improve tools and methods for genericity ER Conference – Shanghai, Nov. 2004
Genericity:Achievements and Limits • Genericity • Common core ontology : PATIENT – FOLLOW-UP – TREATMENT • Common schema concepts and attributes • Common set of events: New Patient, New Treatment, Patient Transfer, Decease, … • Automatic generation of database (ISIS CASE tool) • Database access through views (with limitations due to DBMS) • Intensive use of metadata • Domain values: Comorbidities, … • Multilingualism (UTF8): GUI items, domain values • Standard medical classifications (thesaurus) ER Conference – Shanghai, Nov. 2004
Genericity:Achievements and Limits • Limits • Disease-specific data • e.g., vaccinations for RA • core concepts (DISEASE, TREATMENT) have to be derived according to each disease • Rheumatology TREATMENT is more complex • Country-specific data • Culture and health care system are different • Patient identification, addresses • No standard multilingual version of ICD10 • Thesaurus translation into Chinese • No framework for automatic GUI generation ER Conference – Shanghai, Nov. 2004
Conclusions • Genericity was partly achieved • Gain around 50% for 2nd disease (RA) although more complex • Multilingualism: Chinese, English, French • Extend the ISIS CASE tool • To deal explicitly with Generic and Specific concepts Through and XML (OWL?) description of the domain • To perform automatic GUI generation So as to ease a strong interaction with users ER Conference – Shanghai, Nov. 2004
Grenoble Shanghai Contact 联系方式 • Michel SIMONET Michel.Simonet@imag.fr • Didier GUILLON Didier.Guillon@agduc.com • Dr Haijin YU 俞海瑾 Kidney_rj@medmail.com.cn ER Conference – Shanghai, Nov. 2004
GENNERE partners Paris - NECKER Grenoble – TIMC IMAG Paul LANDAIS Michel & AnaSIMONET DidierGUILLON Grenoble - AGDUC Belgium - RAMIT Michel FORET Philippe GAUDIN Georges de MOOR Shanghai – RUI JIN Nan CHEN Wen ZHANG ER Conference – Shanghai, Nov. 2004
Results (1) ER Conference – Shanghai, Nov. 2004
Results (2) ER Conference – Shanghai, Nov. 2004