Improving patient involvement in NICE’s TA and HST methods and process review.

1. Improving patient involvement inNICE’s TA and HST methods and process review.

2. NICE has many methods and processes • Our methods and processes outline the way to assess heath technologies • They keep decision making fair and consistent • They are not prescriptive, and give flexibility to decision makers

3. We have made progress and still tweaking them • For technology appraisals, the new ‘technical engagement’ gives patients and carerorganisations early insight and opportunity to comment • Due to pilot further involvement of patients/carers earlier in the process This is evolution, not revolution

4. Improving patient and public involvement in TAs, HSTs, Diagnostics and Medtech • Aims of the project

5. Involving patient groups • Work has already begun for ‘improving meaningful patient and public involvement in CHTE programmes’

6. Patient involvement

7. Parameters and limits

8. Stages of patient group involvement in NICE’s methods and process review • Early engagement with patient stakeholders • Summer 2019 • Online engagement for all patient groups who participate with NICE • Send to umbrella groups • Working group • 11 January • Purpose of project • Review feedback • Shape stakeholder agenda and invitee list • Working group • 26 June • Finalise early engagement, communications and questions • Working group workshop • 29 April • Work through themes and priorities from the workshop report for early engagement in the summer • Shape early engagement and communication • Stakeholder workshop report • 24 January • 22 patient groups • Review feedback, Cancer 52 and Genetic alliance reports and charters, and international examples. • Identify priorities and solutions • Working group • 5 September • Go through results of the early engagement • Shape priorities and proposals for methods and process groups • Working group • 5 March • Finalise stakeholder workshop report • Identify umbrella groups to communicate with Public consultation Summer 2020

9. Patient stakeholder workshop – January 2019

10. Key issues identified

11. Online early engagement – summer 2019

12. Steer the process and methods review, policy alignment Includes: NICE, NHSE, DHSC, Independent adviser • Patient involvement working group Relationship between the working groups Makes recommendations to steering group, help knit process and methods guide together, give advice to task & finish groups Includes: NICE, patients, industry, academic reps Proposals for NICE’s public involvement Includes: NICE, patient and public reps • Specific and focused groups • Consider issues • Draft recommendations for changes manual • Includes: NICE, patients, industry, academics reps

13. When will this happen?

14. Thank you for listening. Do you have any questions? heidi.livingstone@nice.org.uk Public Involvement Programme www.nice.org.uk/about/nice-communities/public-involvement @NICEGetInvolved

15. Optional slides on the patient involvement working group membership and stakeholder workshop participants

16. Working group – how were invitees selected

17. Patient involvement working group

18. Stakeholder workshop – how were invitees selected? Draft list checked by the working group and augmented Stakeholders invited