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ASBAH

ASBAH. Spina Bifida and Hydrocephalus. Linda Lewis Helpline and Information Service Manager helpline@asbah.org www.asbah.org. ASBAH. ASBAH is the leading UK registered charity providing information and advice about spina bifida and hydrocephalus

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ASBAH

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  1. ASBAH Spina Bifida and Hydrocephalus Linda Lewis Helpline and Information Service Manager helpline@asbah.org www.asbah.org

  2. ASBAH ASBAH is the leading UK registered charity providing information and advice about spina bifida and hydrocephalus to individuals, families, carers and professionals.

  3. What We Do Our services are targeted towards:- • support to parents before and around the birth of their baby, or diagnosis of the disability • support to the child and family on educational matters • specialised information and help on health matters • helping young people access services to progress towards control of their lives • responding to the needs of adults with spina bifida and/or hydrocephalus

  4. HYDROCEPHALUS

  5. Definition of Hydrocephalus • Hydrocephalus comes from the Greek ‘hydro’ meaning water and ‘cephalie’ meaning brain • Hydrocephalus can result when either too much cerebrospinal fluid (CSF) is produced, or when it is prevented from circulating or being reabsorbed

  6. Treatments • Insertion of a shunt • Endoscopic Third Ventriculostomy (ETV)

  7. Social Issues • Difficulty in group situations • Literal thinking: coping with irony, humour, sarcasm • Difficulties with empathy • Social immaturity • Hidden disability

  8. Social Issues Ways To Help • Encouragement & support in small groups • Training in social skills and empathy • Work on self-esteem

  9. SPINA BIFIDA

  10. What is Spina Bifida? • Spina bifida means ‘split spine’ • In spina bifida, the bones do not close round the spinal cord and the nerves can bulge out on the unborn baby’s back and become damaged

  11. Different Types of Spina Bifida

  12. Spina Bifida May Affect: • Mobility • Sensation • Circulation • Bowel and bladder control • Sexual functioning

  13. Sexual Functioning • Loss of sensation • Erectile dysfunction • Retrograde ejaculation • Low fertility

  14. NB • Latex allergy is common in people with spina bifida. • It can produce severe anaphylaxis and death, even • in people who were not aware they were sensitive • or have had previous contact with latex • Folic Acid and the prevention of neural tube defects

  15. Any Questions? ThankYou

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