Collection and Use of Industry and Occupation Data: Opportunities and Challenges

1. Collection and Use of Industry and Occupation Data:Opportunities and Challenges Dennis Deapen, DrPH NAACCR Annual Meeting Quebec City, June 23, 2010

2. Cancer Reporting in California Volume 1 “Because the identification of occupational cancer is an important aspect of cancer research, every effort should be made to record the occupation and the industry in which the patient works or worked, regardless of whether the patient was employed at the time of admission.”

3. Federal Public Law 102-515 Requires the collection of "information on the industry or occupation history of the individuals with the cancers, to the extent such information is available from the same record."

4. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries* • Surveyed NAACCR member registries • 41 of 53 (77%) responded *Fulton JP, Chiaverini L, Roffers S, Curran D, Parrish P, Clutter G, Hall I, Jamison M, Newton C. In: Wu XC, et al. (eds). Cancer in North America, 1995-1999, Volume Three: NAACCR Combined Incidence. Springfield (IL): North American Association of Central Cancer Registries, April 2002, pp IV-1 - IV-8.

5. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries

6. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries

7. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries Barriers to Accuracy, Completeness and General Usefulness of I&O Data

8. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries Barriers to Accuracy, Completeness and General Usefulness of I&O Data (cont.)

9. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries Summary of Suggestions from Respondents for Improving the Accuracy, Completeness and General Usefulness of I/O Data

10. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries Authors’ recommendations • “Recruit national organizations to provide a strong rationale for complete and accurate I/O data collection in health care facilities, standards to do so, and an infrastructure to support and assure a strong I/O data product” [commentary: very difficult/costly] OR • “Scrap the approach entirely and concentrate efforts on other means of I/O data collection” [commentary: not compliant with Federal Law 102-515]

11. Improving the Quality of Industry and Occupation Data at a Central Cancer Registry* • Reviewed 474 hospital records of 5,602 incident 2005 hospital-reported cases • Presented hospital registrar training and evaluated 2008-09 I/O completeness *Armenti KR, Celaya MO, Cherala S, Riddle B, Schumacher PK and Rees RR. Am J Ind Med published online 6/1/10.

12. Improving the Quality of Industry and Occupation Data at a Central Cancer Registry *Armenti KR, Celaya MO, Cherala S, Riddle B, Schumacher PK and Rees RR. Am J Ind Med published online 6/1/10.

13. Improving the Quality of Industry and Occupation Data at a Central Cancer Registry

14. Observations from the Los Angeles Cancer Surveillance Program

15. Observations from the Los Angeles Cancer Surveillance Program

16. Observations from the Los Angeles Cancer Surveillance Program

17. National Institute for Occupational Safety and Health/California Cancer Registry Collaborative Project