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Report on Personalized Healthcare Technologies: Challenges and Responsibilities

This insightful report, prepared by Professor Christopher Hood and a 8-person Working Party, delves into the ethical implications of new genetic, digital, and imaging technologies in healthcare. Through case studies and ethical considerations, it explores the potential of personalized healthcare and the challenges related to consumer choice and individual responsibility. The report presents findings from 9 meetings over 18 months, including public consultations and evidence gathering sessions, aiming to inform policy makers and healthcare providers on the responsible use of these emerging technologies.

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Report on Personalized Healthcare Technologies: Challenges and Responsibilities

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  1. Introduction Professor Christopher Hood Chair of the Working Party

  2. Why did we write this report? • New developments in genetic research and imaging technology • New applications of internet and digital technology in health care • Said by some to herald a new era of ‘personalised healthcare’ • Raise tricky issues about consumer choice and personal responsibility in health care

  3. Internet users as percentage of population in selected countries

  4. Background to the report • 8 person working party • 9 meetings over 18 months • 3-month public consultation • Various kinds of evidence gathering sessions • Meeting with leading US experts at Harvard School of Public Health

  5. The report • Social context • Ethics • Intervention • Case studies: • Online health information • Online personal health records • Buying medicines online • Telemedicine • Personal genetic profiling • Direct-to-consumer body imaging

  6. In what sense can these technologies deliver ‘personalised healthcare’? Can they deliver: • healthcare more closely tailored to our unique individual features? • healthcare that treats us as a ‘whole person’? • healthcare that we obtain as a consumer good? • healthcare that puts more responsibility on us as individuals?

  7. Responsibility challenges linked to these technologies • Pressures from policy makers • Pressures from commercial providers • How far should more freedom to choose mean more responsibility?

  8. Consumer-choice challenges linked to these technologies • How can we judge the quality of information and services offered to us directly via the internet? • How should the public health care system deal with pressures resulting from new forms of medical profiling and online medicine? • Are there some choices that simply shouldn’t be available?

  9. Intervention • Government intervention is justified if it is feasible and if potential harm is serious • If all else is equal, prefer general to specific interventions • If all else is equal, prefer non-coercive to coercive interventions

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