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Kansas Prematurity Coalition. Developing a statewide collaborative effort. Diane M. Daldrup State Director of Program Services . Coalition Concept.
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Kansas Prematurity Coalition Developing a statewide collaborative effort Diane M. Daldrup State Director of Program Services
Coalition Concept • In Fall, 2009 the March of Dimes called for maternal & infant stakeholders to join forces and form a statewide prematurity coalition focused on developing a strategic, collaborative effort that would focus on issues related to premature birth.
Coalition Goals • 1) create a strong unified voice in Kansas to help reduce the rate of premature births and improve outcomes for children born prematurely and their families • 2) Provide a sustainable setting to network, share best practice information and leverage limited resources • 3) Work together to collaboratively address policy, resource and systems change • 4) Inform and educate practitioners, decision-makers and the general public about current and emerging prematurity issues
Coalition Structure & Membership • Facilitated by the March of Dimes • Statewide focus including rural and urban communities and the Kansas City bi-state area • Includes stakeholders representing diverse health care settings, public health, government, education and insurers • Representation from key M&I organizations including the KDHE, KMCHC, PAK, ACOG, AWHONN, ACNM, KAAP, MCHC, Blue Ribbon Panel on Infant Mortality, Newborn Screening Advisory Council, County Health Departments, etc.
Areas of Focus • Create network among diverse stakeholders • Identify current & emerging issues • Provide targeted education • Promote national best practice models
Targeted Education • Late Preterm Birth • QI Projects (Elimination of elective • c-sections/inductions) • Birth Disparities • Preconception Care • Infant Mortality • Life Course Perspective
National Best Practice Models • Healthy Babies Are Worth the Wait (KY) • Karla Damus, Principal Investigator • Saving Babies Initiative (VA Dept of Health) • Diane Helentjaris, Director • National Partnership for Action (US DHHS) • Mirtha Beadle Deputy Director • ACOG Policy Brief (<39 Weeks Deliveries) • Richard Waldman, President • California Preconception Coalition • Arlene Cummins, Executive Director • Northern Manhattan Perinatal Partnership • Janine Lewis, Senior Associate, Practice Matters
Three Priority Areas Identified • Steering Committee formed and three priorities have been identified. • Eliminating Birth Disparities • Late Preterm/Early Term Reduction • Preconception/Interconception Care
Structure Models Discussed • Various structure models discussed • Numerous leadership options considered • Resource constraints identified • Additional stakeholder input sought
Key Challenges Identified • Systems change is slow and progressive • Numerous stakeholder groups and priorities • Lack of comprehensive plan to address M&I issues • Dramatically changing legislative climate • Limited resources (time, staff, money)
Changing Landscape • State and national resources are diminishing and in many instances disappearing • Professional associations are working to identify key priorities and a more focused plan of work • State and county departments of health are focusing on key activities and providing only the essential services. • March of Dimes is narrowing focus and considering different integrated change models for statewide impact.
What does this mean? • Many of the resources we need are not available at this time. • It’s time to crystallize our focus, strengthen our partnerships and develop a clear plan for achieving the end goal. Get Ready! • Further explore collaborative organizational structures and identify the best fit for statewide success in Kansas
What does this mean? • Pursue a variety of funding streams – local, state and national, looking at government, corporate and foundation sources. • Keep at it ! • The interest and the will to do the hard work is apparent. We are making progress!
March of Dimes Role • Work with stakeholder groups to develop an organizational framework and plan of action • Continue to provide targeted educational opportunities on key M&I topics • Bring best practice speakers to Kansas • Work with stakeholders to secure adequate funding to formally launch a statewide collaborative