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Presentation Overview

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Presentation Overview

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  1. Does Peer Support Matter: How Do We Know?Presented by: Lynne Billings, Canadian Cancer Society (CCS), Manitoba Division Julie Joza, Center for Behavioural Research and Program Evaluation Amber Bielecky, Centre for Behavioural Research and Program EvaluationCanadian Evaluation Society Conference, Vancouver, British Columbia, June 2003

  2. Presentation Overview • Cancer Facts • Overview of the Canadian Cancer Society • Literature on Peer Support Programs • CancerConnection • Program Monitoring • Results • Use of Findings • Lessons Learned

  3. Cancer Facts

  4. Cancer Facts • Cancer is primary health concern for Canadians • 1 in 3 Canadians will develop cancer • 136,900 new cases of cancer in 2003 • 66,200 people will die of cancer in 2003 • 70% increase in new cases by 2015

  5. Overview of the Canadian CancerSociety

  6. Canadian Cancer Society • National, community-based organization of volunteers • National offices in Toronto and Ottawa • 10 provincial and territorial divisions • Numerous local community offices • 220,000 volunteers • 550 staff

  7. Vision and Mission • Vision • Creating a world where no Canadian fears cancer • Mission • Eradicate cancer and enhance the quality of life of people living with cancer

  8. Priorities Research Advocacy Primary Prevention Information Support for People Living with Cancer CancerConnection

  9. Peer Support Programming • Peer support programs links people living with cancer (PLWC) with volunteers who have had a similar cancer experience • PLWC have an understanding of and first-hand experience with the course and treatment of the disease • Sharing the experience helps PLWC better understand and cope with the disease

  10. Literature on Peer Support Programs

  11. Supportive Care Framework Physical Psychological Individual Living with Cancer Emotional Social Spiritual Practical Informational (Fitch, 1996)

  12. Peer Support Programs Supported by the Literature • Peer support helps reduce the negative impact of disease • Strong theoretical rationale • Stress and coping perspective • Social comparison theory • Helper-therapy principle • Optimal matching theory

  13. Benefits of Peer Support • Hope • Encouragement • Reassurance • Decreased anxiety • Feel better informed • Able to identify problems more readily

  14. CancerConnection

  15. CancerConnection • Telephone-based • Matches clients with trained volunteers • Provides referrals to other programs/services

  16. Supportive Care Framework Physical Psychological Individual Living with Cancer Emotional Social Spiritual Practical Informational (Fitch, 1996)

  17. CancerConnection History • 1995 – Program started in response to the need for more accessible peer support programs • 2002 - National CCS Board of Directors approved evidence-based, outcome-driven approach to development and delivery of its services

  18. CancerConnection is designed to be... • Accessible • Responsive • Free • Confidential

  19. Long-term outcomes Enhanced quality of life for people living with cancer Intermediate outcomes People living with cancer have the supportive care they need Callers feel supported emotionally Callers feel supported psychologically Callers feel supported socially Callers feel supported spiritually Callers are better informed about their cancer experience and the resources available to them Initial outcomes Number of timely, suitable matches made based on criteria important to the client Number of referrals to other sources of information and support Outputs Provide confidential telephone-based, peer support to people living with cancer (and their caregivers) Provider referral to other sources of support and information Activities Staff Volunteer resources available for matches Funds Materials/Database Information about other supportive care and information resources Inputs

  20. How the Program Works Request for Support Intake Match Volunteer Follow-up Duration of the Support Contact Client Follow-up Close of Match

  21. Essential Elements • Accountability to stakeholders • Supports organizational goal of linking science to practice to policy • Standard service delivery • Easily accessible • Confidential

  22. Essential Elements continued • Appropriate volunteer resources • Appropriate staff resources at all levels • Adequate financial resources • Promotion

  23. Program Monitoring

  24. Evaluation Partner • Centre for Behavioural Research and Program Evaluation (CBRPE), U of Waterloo, Ontario • Work jointly to develop evaluation strategy • Comparisons to key indicators across regions over time

  25. Evaluation Strategy • Monitoring • internal quality assurance and accountability • Outcome Evaluation • assess program impact • Research • evidence-based and linking science to policy and practice

  26. Indicators • Inputs • promotion, financial resources, human resources • Outputs • program recognition, program quality, service delivery, satisfaction, reach • Outcomes • cost-effectiveness, impact

  27. Current Program Monitoring • Purpose is to facilitate ongoing review and decision-making related to: • reach • access • promotion • volunteer training • client satisfaction

  28. Protocol Request for Support Intake Match Volunteer Follow-up Request clients’ permission to send survey Duration of Support Contact Client Follow-up Closing of Match

  29. Survey Eligibility Criteria • Matched with a volunteer • Consents to receiving a survey

  30. How Are We Doing? Survey

  31. Implementation • Returned to the Division Office • Forwarded to CBRPE for input and analysis • Entered into MSAccess database • Data report generated • Written report forwarded to the Division Office

  32. Program Monitoring in Manitoba • Pilot tested the instrument and protocol in 2000 • Phase 1: October 2000 to March 2001 • Revised protocol and instrument in 2001 • Phase 2: April 2001 to December 2001 • Continued with revised protocol and instrument • Phase 3: January to June 2002 Phase 4: July to December 2002

  33. Results

  34. Response Rates • Phase 1: RR – 31% (50/163) • Phase 2: RR – 33% (86/264) • Phase 3: RR – 44% (53/120) • Phase 4: RR – 37% (54/148) • Overall (all 4 Phases): RR – 35% (243/695)

  35. Reporting Protocol • Each phase Manitoba provides: 1. Description of all clients who contact program • - gender • - year born • - urban/rural residential location • - cancer type • - year of diagnosis • - first diagnosis/recurrence status • - patient/caregiver status • 2. List of services delivered • 3. Completed surveys

  36. Reporting Protocol continued • Each phase CBRPE provides: • Reach analysis • Detailed picture of services delivered • Representativeness analysis • Survey findings

  37. Reach Analysis • Comparison of cancer patients in Manitoba with cancer patients of the program

  38. Reach: Gender Manitoba Cancer Patients Program Clients (Patients only)

  39. Reach: Cancer Types Manitoba Cancer Patients Program Clients (Patients only)

  40. Reach: Urban/Rural Location Manitoba Cancer Patients Program Clients (Patients only) Non-MB Residents or Missing

  41. Reach: Age Groups Manitoba Cancer Patients Program Clients (Patients only)

  42. Cancer Patient Clients (further described) • 85% diagnosed in 2002 • 86% experiencing a first diagnosis of cancer (as opposed to a recurrence) • 93% cancer patients (as opposed to caregivers)

  43. Services Delivered:July to December 2002

  44. Representativeness Analysis • Comparison of survey respondents to all clients of the program • gender • cancer type • rural/urban location • age • year of diagnosis • 1st/recurrence status • patient/caregiver status • Survey respondents and clients similar

  45. Referral sources Contact delivery method Access Volunteer match Number of contacts Topics discussed Overall service Perceived benefits Survey Findings

  46. Referral Sources

  47. Contact Delivery Method

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