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Palliative Care Program Network Public Health Program Open Society Institute New York

Palliative Care Program Network Public Health Program Open Society Institute New York. Mary Callaway, Director Kathleen Foley, M.D., Medical Director Sept. 5, 2005. Harm Reduction Palliative Care Public Health Watch TB Prevention & Control Sexual Health & Rights Roma Tobacco Control.

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Palliative Care Program Network Public Health Program Open Society Institute New York

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  1. Palliative Care ProgramNetwork Public Health Program Open Society InstituteNew York Mary Callaway, Director Kathleen Foley, M.D., Medical Director Sept. 5, 2005

  2. Harm Reduction Palliative Care Public Health Watch TB Prevention & Control Sexual Health & Rights Roma Tobacco Control HIV/AIDS Salzburg Seminars OSI Seminar Series Policy Fellows Global Fund Media Open Society InstituteNetwork Public Health Program

  3. 1982 WHO Definition of Palliative Care “The active total care of patients whose disease is not responsive to curative treatment. Control of pain, of other symptoms, and of psychological, social, and spiritual problems is paramount. The goal of palliative care is the achievement of the best quality of life for patients and families.”

  4. 2002 WHO Definition of Palliative Care "Palliative care is an approach which improves quality of life of patients and their families facing life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual"

  5. WHO Monographs • 1986 Cancer Pain Relief translated into 22 languages • 1990 Cancer Pain Relief and Palliative Care translated into 10 languages • 1996 Cancer Pain Relief with a Guide to Opioid Availability translated into 16 languages

  6. WHO Monographs • 1998 Cancer Pain Relief and Palliative Care in Children translated into 6 languages • 1998 Symptom Relief in Terminal Illness translated into 8 languages • 2002 National Cancer Control Programmes: Policies and Management Guidelines translated into 3 languages

  7. World Health Organization

  8. Palliative Care in Eastern Europe and Central AsiaHistorical Perspective • 1998 Poznan Declaration • 1999 ECEPT organized • 2000 OSI developed palliative care initiative. EAPC-E- Center for palliative care in Eastern Europe

  9. Palliative Care Program • The overall goal of this initiative is to serve as a catalyst to create palliative care as an essential aspect of health care policy and health care systems and to build capacity for palliative care services, education, and advocacy within the region.

  10. Palliative Care Program • Central & Eastern Europe & Former Soviet Union • Began 2000 • Collaboration between Project on Death in America and Network Public Health Program • $500,000 a year for three years • South Africa • Began 2002 • $330,000 a year for three years • International Expansion • Began 2005 • CEE & FSU, SubSaharan Africa, Middle East, Southeast Asia, Turkey

  11. Goals • Professional & Public Education • Drug Availability • Policy • Advocacy

  12. Professional & Public Education • Integrate palliative care into the medical, nursing, social work undergraduate and graduate school curriculums • Health system managers, policy makers, community caregivers, • Enhance the workforce capacity to provide palliative care services through institutionalization of sustainable training programs

  13. Drug Availability • Examine and recommend the necessaryt changes in national drug control laws and regulations in order to guarantee the availability of opioid analgesics for pain and symptom management in patients with cancer and/or AIDS

  14. Policy • Integrate palliative care throughout the healthcare system • Change laws governing the registration and licensing of delivery systems • Integrate palliative care in national cancer control and AIDS programs • Develop national standards and guidelines for palliative care

  15. Advocacy • Financing for palliative care services from government health budget • Financing for international donors and development agencies • Expand and enhance the capacity of existing professional medical associations and organizations to support and sustain palliative care development

  16. Albania Armenia Bosnia-Herzegovenia Bulgaria Croatia Czech Republic Estonia Georgia Hungary Kazakhstan Latvia Lithuania Macedonia Moldova Mongolia Poland Romania Russia Serbia Slovakia Tajikistan Ukraine Uzbekistan Programs Supported

  17. 2000-2005 • grants made to: • National foundations • NGO’s • Policy Centers • National and international professional associations • WHO-Geneva, WHO-Euro, WHO Collaborating Center, Wisconsin

  18. Programs Supported • Palliative Care Resource Training Centers in Croatia, Hungary, Mongolia, Poland, Romania, Russia, Slovenia • National & Regional Palliative Care Courses • Meetings with Policy Makers • Translation of Educational Materials • Policy Fellows in Croatia and Slovenia • CEE & FSU Newsletter • Collaborations with: WHO, ESMO, IASP, EFIC, IAHPC, HtH, EAPC-E, ECEPT

  19. WHO Cancer Pain Relief and Palliative Care • Bulgarian • Georgian • Hungarian • Lithuanian • Moldovan • Mongolian • Romanian • Russian • Serbian • Slovenia • Turkish

  20. Transitions in End of Life Care Mapping hospice and palliative care programs and services in CEE & FSU Published by Open University Press in their “Facing Death Series” Distributed to health care policy makers www.eolc-observatory.net

  21. Program Supported • WHO Publications—Solid Facts, Better Care of the Elderly • WHOCC & Romanian Beacon Center Drug Availability • International Observatory on End of Life Care • European Association for Palliative Care • Country Palliative Care Needs Assessments • Salzburg Medical Seminars • OSI Seminar Series

  22. www.eolc-observatory.net

  23. WHO/EDM/QSM/2000.4 DISTRIBUTION: GENERAL  Bulgarian--done Georgian--pending Hungarian--pending Lithuanian--done Moldovan--done Mongolian--done Romanian--done Russian--done Serbian--pending Slovenian--pending Turkish--pending NARCOTIC & PSYCHOTROPIC DRUGS ACHIEVING BALANCE IN NATIONAL OPIOIDS CONTROL POLICY GUIDELINES FOR ASSESSMENT World Health Organization

  24. Leverage Other Donors • Private foundations and donors • International development funds • EU funds • Industry partnerships -pharmaceutical companies -medical device companies -insurance companies • Government partnerships

  25. Goals of the Meeting • To bring together national cancer, pain, and palliative care leaders to discuss cancer, pain, and palliative care in their countries • To identify which countries have National Cancer Control Programs and whether they include palliative care • To discuss how palliative care can be integrated into NCCP

  26. Goals of the Meeting • To discuss the challenges of integrating palliative care into cancer care • To discuss an OSI RFP for the development of palliative care programs in cancer programs in these eleven countries • To develop action plans for further collaborative work together

  27. The health care system we develop today will be the system that takes care of our loved ones tomorrow.

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