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Translating Practice into Evidence: Community-Engaged Research

Translating Practice into Evidence: Community-Engaged Research. Why including community stakeholders in your research process improves both science and health practice Kevin Grumbach, MD Ellen Goldstein, MA Margaret Handley, PhD, MPH. Course Objectives.

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Translating Practice into Evidence: Community-Engaged Research

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  1. Translating Practice into Evidence: Community-Engaged Research Why including community stakeholders in your research process improves both science and health practice Kevin Grumbach, MD Ellen Goldstein, MA Margaret Handley, PhD, MPH

  2. Course Objectives Define the key principles of community-engaged research. Describe the benefits of community-engaged research for the scientific validity, impact, and ethical conduct of research. Identify challenges to community engagement in research and strategies to overcome these challenges . Apply the principles and methods of community-engaged research to the student’s own research program and integrate the methods in a practical manner into the protocol for a specific research project.

  3. Epi 248 Course structure Readings before each session Homework after each session: due Monday Combination of didactic presentations, panels, full class and small group discussion Complete a Community Engagement Planning Document by the end of the course Grades based on homework, participation, and attendance

  4. Definition of Community A group of people Linked by social ties Sharing common perspectives or interests Who may or may not share a geographic location Duke Center for Community Research Could be clinicians, policymakers, community agency staff, neighbors, advocates…

  5. What’s your project?Who is your community? Who else?

  6. NIH Roadmap Long term plan Sets priorities for NIH Emphasizes strengthening linkages between research and practice Encourages improved communication and cooperation between researchers and communities Duke Center for Community Research

  7. Definition of Community Engagement The Centers for Disease Control and Prevention (CDC) define community-engagementas: “ the process of working collaboratively with and through groups of people affiliated by geographic proximity, special interest, or similar situationsto address issues affecting the well-being of those people” Well-Established Models Community-Based Participatory Research Practice-Based Research Networks But not limited to these “classic” models

  8. Traditional Research Researchers identify problem or respond to request for proposals Develop research plan, select community & secure funds Develop and implement intervention or data collection Collect data Analyze data Interpret data, write papers & disseminate results to the academic community Duke Center for Community Research

  9. Community-engaged Research …is based on traditional research, and describes a continuum of types of participation by various types of community stakeholders.

  10. Community Engaged Research

  11. Community Engaged Research

  12. Why Community Engagement? Ethical, respectful and responsible relationships with study participants and the community Better science

  13. Better ScienceA Successful Research Study Needs: Good research questions Valid and feasible research design and methods Successful data collection Informed data analysis and interpretation Effective dissemination of results Translation into action, behavior change, and improved health

  14. Community Engagement: Research Question Answers a question that emerges from practice or will matter to practice… Balanced with theoretical and literature review approach.

  15. Research Question Community input can result in relevant questions that address important health issues Can the RQ answer the “So What?” question? Community-informed questions respond to complex “real world” situations Will outcomes be valid when applied to practice contexts? A good research question is informed by how community members understand the health issue

  16. Approaches to Engaging Community in Research Question Development • Informal consultation, advice, feedback • Focus groups • More formal advisory committee • Being clear up front about ground rules: • What about the research question(s) is open for discussion and modification? • Expectations about time, compensation, power, and credit

  17. Research Question • How might you involve your community in development or refinement of your research question?

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