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The Housing and Dementia Research Consortium

The Housing and Dementia Research Consortium. Sue Garwood Housing LIN Dementia Lead. H | D | R | C. Back to the beginning. 2006 – Housing LIN dementia lead Survey into gaps in information, knowledge and skills in relation to people with dementia in own homes →

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The Housing and Dementia Research Consortium

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  1. The Housing and Dementia Research Consortium Sue Garwood Housing LIN Dementia Lead H | D | R | C

  2. Back to the beginning... • 2006 – Housing LIN dementia lead • Survey into gaps in information, knowledge and skills in relation to people with dementia in own homes → • Housing LIN Information sharing seminar in August 2007 • Housing 21/Dementia Voice – Planning and consultation forum – January 2008 → • Formation of the HDRC

  3. Early days • H21, Hanover, Anchor, MHA & Thomas Pocklington Trust, supported by Housing LIN. Sept 2010 ECCT. • Key aim: “To work towards developing robust research on dementia care in housing with care, to influence policy and practice.” • Shape research agenda to be useful and relevant • Work together to have greater weight when applying for funding • Deliver more ambitious, large scale, multi-site, multi-provider research • Share findings • Inaugural meeting March 2008, launch at Dementia Congress, and invited wider membership – currently approximately 80...providers, commissioners, academics, architects etc

  4. Some achievements but a dawning realisation... • Scoping review of literature funded by JRF and Beyond Dementia publication • September 2009 – membership event → start of a list of key research themes and questions • Work to try and influence national dementia strategy and raise profile of housing and dementia at Dementia Congress • But challenging to do the necessary alongside day jobs → appointment of co-ordinator funded by core members

  5. July 2010 – April 2011 • Nine-month tenure as co-ordinator...did a lot but not much to show for it apart from building blocks: • Pulled together and developed priority research questions • Networked with potential research partners, sending relevant research topics • Researched funding opportunities • PR & communications; tried to establish a website • Collaborated with Dawn Brooker on an unsuccessful bid to LLHW re identifying and assessing wellbeing of people with dementia in Housing with Care • Arranged meeting with researchers to identify design and built environment priorities and then worked on developing a couple of proposals which Julie followed up • Joined the Dementia Action Alliance

  6. New co-ordinator hits ground running • Julie appointed July 2011 – employed by H&C 21 on behalf of HDRC • Scoped up priority research themes • Built up project teams, initiated and contributed to 5 funding bids, HDRC included as collaborator of 5 other bids • Autumn 2011– small scale in-house research: provision for people with dementia in 7 HWC schemes → report and wish to extend • Sorted the website, including newsletter • PR, communication and expansion of membership and steering group • Contributed to a housing and dementia working group set up to influence policy • Work on a successfully funded project Will leave it to Julie to elaborate on research bids

  7. Changes abound: 2013 → • Core group – changes in organisations and representatives • Inviting new core members • Broadened scope to include other accommodation and care settings • Need to find a “new home” for the consortium • Need to find better ways of involving our wider membership and finding funding

  8. I was asked the other day: • What different housing-based models exist for people with dementia? • What research is there into the ability of extra care housing to meet the needs of people with dementia?

  9. My own assessment of where we are • Progress is being made but it is slow: • Number of research projects specifically focusing on accommodation and dementia still relatively low • Of those that exist, even fewer are multi-site, & where they are, still single provider – some findings may reflect provider’s approach rather than EC generally • We still don’t even have an overview of who is doing what out there for people with dementia • Continuing challenges to get funding for the areas of research that would be really valuable to housing/accommodation and care providers • Too niche for mainstream funders? • Complexity of the sector so need for large scale, multi-site research - expensive? • Having to shape proposals to please the funders • Determination and commitment are high!

  10. My personal priorities remain to: • Extend the in-house work to establish a baseline of what is out there and who is doing what • Research the pros and cons of different models of accommodation and care for people with dementia – outcomes for people at different stages at point of entry, and once there • Test out of commonly asserted design principles for people with dementia But you may think differently For more information and Strategic Overview - HDRC website http://housingdementiaresearch.wordpress.com/

  11. H | D | R | C Thank you! C/o EAC 3rd Floor, 89 Albert Embankment London SE1 7TP email: info@housinglin.org.uk tel: 020 7820 8077 website: www.housinglin.org.uk Twitter: @HousingLIN

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