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Challenges of Alzheimer's & Caregiving

Learn about the challenges of Alzheimer's disease and caregiving, including early-stage diagnosis, cognitive impairment, and the different types of dementias.

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Challenges of Alzheimer's & Caregiving

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  1. The Challenges of Alzheimer’s and Caregiving Mark Hensley, MA Alzheimer’s Support Specialist Project C.A.R.E. State Director NC Division of Aging and Adult Services

  2. More than Alzheimer’s • Early-stage diagnosis in mid-40’s • Cognitive impairment • The ABC’s of Dementias: • AD, Vascular, Mixed, LBD, FTD, PDD • Dementias/Major Neuro-cognitive Disorders: • An acquired adult onset, a change, progressive, chronic, functional impairment, not due to delirium

  3. More than Memory Loss • Language • Visual perception • Executive function • Time disorientation • Apathy • Judgment • Behavior • Psychiatric symptoms

  4. The Face of Alzheimer’s Disease & related dementias Today • Third-leading cause of death – The Washington Post March 5, 2014 • 5.2 million Americans have Alzheimer’s disease – National Alzheimer’s Association • Currently, NC has over 170,000 older adults with Alzheimer's disease or other types of dementia. • By 2030, the total number is projected to rise to over 300,000 • There is no known cure for this fatal disease.

  5. National Alzheimer’s Plan Act (NAPA) • Obama signed into law in 2011. • Requires the development of a national plan to accelerate research toward treatment and prevention of Alzheimer's, and to improve care, services, and support to people with Alzheimer's, families and caregivers. • www.alzheimers.gov • The National Plan to Address Alzheimer's Disease will be available on May 15th.

  6. Think About it… • By the year 2025, NC will have more people 65+ with Alzheimer’s disease or related dementia as the current population of the entire City of Fayetteville….. • The current population of Fayetteville is 200,504 • The number of people with dementia 65 and over in 2025 will be 210,000 • The next highest populated city is Durham with 228,000

  7. Caregivers & “the long goodbye” • Core of the long-term care network • Unpaid, unrecognized • More often female • Stress, depression, burden, guilt, anxiety, physical exhaustion, angry, grieving, and worry • Health and wellness suffers • Sandwich generation

  8. The Cost of Alzheimer’s in NC * National Alzheimer’s Association

  9. 2013 Year of Transition: State-wide NC Senate Bill 897 $300,000 state appropriations Collaboration with National Family Caregiver Support Program (FCSP) 16 NC Area Agencies on Aging Through a family consultant model, Project C.A.R.E. helps create a seamless, coordinated delivery system that is responsive to the needs, values and preferences of Alzheimer’s families.

  10. North Carolina Project C.A.R.E.(Caregiver Alternatives to Running on Empty) • Three offices: • Western Office - Asheville NC, Land-of-Sky Area Agency on Aging (35 counties) 828-251-7485 • Central Office - Durham NC, Duke Family Support Program (32 counties) 919-660-7510 • Eastern Office - Greenville NC, Alzheimers North Carolina (33 counties) 252-355-0054 • Mecklenburg DSS – Just One Call 704-432-1111 • NC DAAS – 919-855-3417

  11. North Carolina Project C.A.R.E. (Caregiver Alternatives to Running on Empty) Alleghany Camden Currituck Ashe Northampton Gates Warren Surry Stokes Vance Watauga Person Caswell Rockingham Granville Hertford Halifax Pasquotank Perquimans Wilkes Forsyth Yadkin Chowan Durham  Franklin Bertie Orange Avery ● Guilford Alamance Mitchell Nash Caldwell Yancey Edgecombe Alexander Davie Martin Madison Iredell Davidson Wake Washington Tyrrell Burke McDowell Dare Wilson Chatham Randolph Buncombe  Pitt  Catawba Rowan Haywood Beaufort Swain Lincoln Johnston Hyde Lee Greene Rutherford Cabarrus Cleveland Graham Harnett Henderson Jackson Wayne Stanly Montgomery Mecklenburg Gaston Polk Moore Lenoir Craven Macon Transylvania Pamlico Cherokee Cumberland Richmond Clay Jones Hoke Sampson Anson Union Scot Land Duplin Onslow Carteret Robeson Bladen Pender New Hanover Columbus March 2014 Brunswick

  12. Family Consultant Model • Personal relationship • Individualized care and assistance • Coaching, Education, Problem-Solving • In-home assessment • Family-centered, holistic approach • Link to community resources & supports • Ongoing Support • First responder

  13. Call to action….Next Steps • NC Alzheimer’s & Dementia Coalition, Spring/Summer 2014 • Medicaid MFP Demonstration • The Healthy Brain Initiative DPH • DHHS Employee Education/Awareness • AARP Caregiver Campaign, 2014 • Increase funds for Project C.A.R.E.

  14. Contact Information Mark Hensley, MA Project C.A.R.E Director NC Division of Aging and Adult Services mark.hensley@dhhs.nc.gov http://www.ncdhhs.gov/aging 919-855-3417

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