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Be Inspired – a non pharmacological breathlessness management pathway. Sue Acreman April 2010. The 8 domains of care. Physical Practical Nutritional Psychological Informational Spiritual Financial Social. Background. Evidence review 2008 Service provision survey Audit
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Be Inspired – a non pharmacological breathlessness management pathway Sue Acreman April 2010
The 8 domains of care • Physical • Practical • Nutritional • Psychological • Informational • Spiritual • Financial • Social
Background • Evidence review 2008 • Service provision survey • Audit • Local demographics/ stats
Aims Develop a sound, evidence based pathway Equity of access to care Empowerment and independence Widen knowledge and skills in managing breathlessness
Resources/outputs • Pathway • Assessment measures • Handbook • Calming hand • Systematic focussing • Relaxation technique • Education programme
Step 1 :Triage - Meets criteria No Yes Step 2 : Refer for BeInspired Intervention EXITpathway • Step 3: Arrange Appointment • send self assessment form & daily activity impact diary - • Step 4: Assessment and Intervention – still meetscriteria • Iniatiate Supported self management • Triggers • Beinspired handbook • Signpost Step 5: Review Are BeInspired interventions adequate for patients needs? Yes No • Step 6: Initiate referral for complex case management • Goal setting • Outcome measures • Self management plan
Results – 1 (February 2010)
Type of Intervention 17% Complex case management Self management 83% Interim Results – 3(February 2010)
Interim results (4) It is nice to have all the necessary information in one place to hand If only I had known all this before All useful-good simple basic details that have helped my breathing I couldn’t believe I had been struggling so long with my breathing and the answer was so simple once explained
Conclusions Dyspnoea is not routinely assessed and is an expected burden for many people with cancer Dyspnoea can affect all patients with cancer, irrespective of tumour site Early evaluation suggests that appropriate patients are being identified and the pathway and other resources are fit for purpose
Contact details sue.acreman@wales.nhs.uk Work mobile: 07837163930