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Data Sharing of Medical and Health

The Fifth meeting of US-China Roundtable on Scientific Data Cooperation. Data Sharing of Medical and Health. Depei Liu, MD, Ph.D. National Center for the Management and Sharing of Population and Health Data Chinese Academy of Medical Sciences & Peking Union Medical College 2011-10-27.

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Data Sharing of Medical and Health

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  1. The Fifth meeting of US-China Roundtable on Scientific Data Cooperation Data Sharing of Medical and Health Depei Liu, MD, Ph.D. National Center for the Management and Sharing of Population and Health Data Chinese Academy of Medical Sciences & Peking Union Medical College 2011-10-27

  2. Introduction ◇ Medical science data sharing working ten years. ◇ Sino-US scientific data sharing roundtable five times ◇ National Population and Health Scientific Data Sharing Platform(NPHDSP) working in 2011 - NPHDSP into a stage of long-running and server • - supported by national budget - To provide data sharing services for somemajor projects - To provide special services

  3. 1. National population and health data sharing platform for scientific progress2. Scientific data collection in the field of population and health3. International cooper ation in medical science data sharing 

  4. (1)National cientific Data Sharing Platforme for Population and Health 2002-2004 2005-2009 2010-2011 Content Resource survey Resource survey Program management Program management Needs analysis Needs analysis Standards & norms standards and norms Resource system Resource system construction Technology platform construction Technology platform Data center basic medicine, clinical medicine, public health, TCM, Pharmacy Local node Sharing node construction

  5. Framework of support and organization Platform Commission Management Center Population and Health Data Sharing Specialist s decision makers Users committee Resource building Standard norms Tech platform Supervision and comments User service Int’l coopperation Platform office Population& reproductive health Data center Basic medicine Data center Clinical medicine Data center Public health Data center Chinese medicine Data center Pharmacy Data center Academic associations/research groups Local nodes

  6. National Platforme of cientific Data Sharing for Population and Health Specialty Scientific Data Center

  7. National Platforme of cientific Data Sharing for Population and Health

  8. Chinese Physical Constants Database

  9. Design of pathology theme database Design of the theme database for National Database of Diagnostic Pathology of Difficult Diseases: Collection and compilation of the cases presented to national pathology meetings and to the diagnostic pathology meetings organized by the pathology branches in the localities in recent three years. All typical cases, difficult cases, and cases with complete auxiliary lab tests, complete data, clear diagnosis and through discussions may be included. These cases are classified according to anatomical locations and systems of the disease, in addition to categorizing of the users. Via a shared network, the users may register and enjoy categorized authorizations for services.

  10. Public Health Scientific Data Center

  11. Traditional Chinese Medicine Scientific Data Center

  12. Medicinal Natural Bioactive Products Databases Compound’s physio-chemical nature, biological activity and chemical structure are available, and the chemical structure can be displayed, edited and downloaded.

  13. Demographic statistics of population and health science data sharing platform

  14. Actively push the sharing information to urban communities and rural areas

  15. the analysis results of rural health data

  16. China rural three-graded health service network

  17. Health Topics Services for rural three-graded medical care in China

  18. 1. National population and health data sharing platform for scientific progress2. Scientific data collection in the field of population and health3. International cooper ation in medical science data sharing 

  19. (2)“十一五”国家科技计划人口健康领域科技资源汇交Resources submission for National science and technology projects

  20. Data collection principle 1. Full collection principles: the formation of scientific and technological projects of information technology resources should be in principle collection to the state-designated Science and Technology Infrastructure2. Principle of efficiency increase: the resources to collect and submit the issue and acceptance of work and project coordination to promote the combination of full use of inspection work in the basis for the work already3. Principles of authenticity and reliability: the converging requirements of true and reliable technology resources to ensure quality.

  21. Organization and management of data collection 1.Collection led by the planning department, the National Science and Technology Infrastructure Center, responsible for organizing. 2. Department of the first subject holder is responsible for organizing the specific subject of science and technology resources to collect the project unit, supervision, and review. 3. Project Leader in charge of scientific and technological resources sorting, processing and collection to ensure the integrity of scientific and technological resources.

  22. Collecting objects and methods 1.collection work is mainly through a network approach. Enter the "national scientific and technological projects and technological resources collection system" by logging into China Science and Technology Resource sharing Network (www.escience.gov.cn), collection to carry out the work. 2. The scientific and technological resources that can not be collected through network, the CD-ROMs are required to be submitted to the National Science and Technology Infrastructure.

  23. Resources submission system for National science and technology projects Submission of clinical scientific data resource about chinese deaf patients

  24. 1. National population and health data sharing platform for scientific progress2. Scientific data collection in the field of population and health3. International cooper ation in medical science data sharing 

  25. Overseas users of China population and health science data sharing platform 国际用户地区排名统计 USA 17.20%

  26. 芬 兰 瑞典 挪 威 俄罗斯 爱沙尼亚 丹麦 加拿大 英国 德国 波兰 比利时 法国 西班牙 美国 意大利 塞浦路斯 韩国 日本 埃及 沙特阿拉伯 中国台湾 香港 非律宾 印度 意大利 新加坡 韩国 巴西 澳大利亚 南非 阿根廷 新西兰 Users all over the world

  27. Suggestions 1. International Cooperation Working Group of Medical and Health Scientific data sharing to be established. 2. The standards of scientific data sharing in the field of medical and health to be drawn up. 3. Creating international medical and health service platform of scientific data sharing. 4. Integration of global Medicine and Health Scientific data resources 5. Provide global medical and health scientific data sharing services

  28. Thanks

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