'Rare diseases research' presentation slideshows

PCORnet: the National Patient-Centered Clinical Research Network

PCORnet , the National Patient-Centered Clinical Research Network Andrew A. Nierenberg, MD Adapted with permission from Rachael L. Fleurence , PhD Richard Platt, MD, MS. PCORnet: the National Patient-Centered Clinical Research Network. Goals:

655 views • 42 slides

PCORnet: the National Patient-Centered Clinical Research Network

PCORnet , the National Patient-Centered Clinical Research Network Andrew A. Nierenberg, MD Adapted with permission from Rachael L. Fleurence , PhD Richard Platt, MD, MS. PCORnet: the National Patient-Centered Clinical Research Network. Goals:

546 views • 42 slides

The Rare Diseases Clinical Research Network (RDCRN)

The Rare Diseases Clinical Research Network (RDCRN). Data current as of August 31, 2014. Rare Diseases Clinical Research Network (RDCRN) is coordinated by Office of Rare Diseases Research, NCATS.

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Potential to support research and increase awareness on rare diseases research by Eurordis

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EU publicly funded research programs

EU publicly funded research programs. FDA/EMA Orphan Designation and Grant Workshop (12 Oct 2012). Presented by: Jordi Llinares Head of orphan medicines. Outline. Small and Medium sized Enterprises at EMA The European Framework programme A collaborative example.

367 views • 22 slides

Creating action with information: The Rare Disease Community

Creating action with information: The Rare Disease Community. Cary O. Harding, MD Department of Molecular & Medical Genetics. Disclosures. BioMarin Corporation Funds for participation in clinical trials Sapropterin dihydrochloride rAvPAL-PEG National PKU Alliance

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LESSON 7: Who Should Pay? Funding Research on Rare Genetic Diseases

LESSON 7: Who Should Pay? Funding Research on Rare Genetic Diseases. PowerPoint slides to accompany Using Bioinformatics : Genetic Research.

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NAS/IOM Review of Rare Diseases Research and Orphan Products Development - USA

NAS/IOM Review of Rare Diseases Research and Orphan Products Development - USA. Timothy Cote, M.D., MPH Director, Office of Orphan Products Development Food and Drug Administration Stephen C. Groft, Pharm.D. Director, Office of Rare Diseases Research National Institutes of Health

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ICARE Member Reports

ICARE Member Reports. NIH Office of Rare Diseases Research

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