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User Privacy Preferences on AHA

This collaborative work session discusses mid-term results and partner engagement regarding user privacy preferences on the Active and Healthy Aging (AHA) platform. The meeting aims to standardize the format for describing individual privacy preferences and ensure that privacy settings work across all AHA solutions.

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User Privacy Preferences on AHA

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  1. EIP-AHA D4 & EUROCITIES Manchester – 2/3 July 2018 #EuroAgeingGM

  2. THANK YOU FOR YOUR ATTENTION C2/D4 EIP-AHA Collaborative Works: Mid-term results and partner engagement Chair: Javier Ganzarain User privacy preferences on AHA Javier Ganzarain AFE and independent living solutions based on blockchaintechnologies Pablo Coca EIP AHA / EIP SCC coordination working group Julia Wadoux The caregivers role in ICT development and exploitation for AFE Oscar Zanutto Iratxe Unibaso-Markaida: iratxe.unibaso@deusto.es Researcher at AGEING RESEARCH team at University of Deusto

  3. Privacypreferences for AHAC2/D4 CollaborativeWork 1 D4 ActionGroup F2F Manchester Meeting, July 3rd 2018 Javier Ganzarain

  4. User privacy preferences on AHA • User preferences on privacy settings are meant to be complementary to data protection laws (e.g. GDPR) • “One size fits all” does not work for privacy settings for individual users - Users must have full control • Objectives: • The user understands the “costs and benefits” of data sharing • Standardized format of describing each user’s privacy preferences • Privacy preferences should work across all AHA solutions

  5. User privacy preferences on AHA UseMyDataForAdvertisement No ShareMyMedicalDataWith CloseRelatives; Doctors ShareMySmarthomeDataInCloud No  Personal profiles with individual data sharing preferences

  6. Step by step Collection of use cases provided by various authors from the group Analysis and review of the use cases regarding the specific privacy issues Categorization scheme that defines a framework for the categories of privacy issues “Setup questions” for specific privacy issues of the use cases “EIP-AHA preference terms” (according to ISO/IEC 24751-1 Access4all framework) for each of the setup questions Privacy preference terms in ISO/IEC 24751-5 (Access4all privacy preferences) aligned with EIP-AHA preference terms

  7. Use case collection METHODOLOGY

  8. Example METHODOLOGY

  9. How can thisbeseenbytheuser?

  10. Hello, Luísa Costa Do you agree to share any personal data? You answered yes Do you agree to share any health data? You answered yes Please specify select the app Medication with local pharmacy delivery service Medical appointments with Name of doctors with Chronic diseases with TYPE OF DATA myprivacypreferences.com

  11. MEET THE TEAM! Coordinators: Carina Dantas carinadantas@caritascoimbra.pt Gottfried Zimmermann gzimmermann@acm.org • Active working group members: • Gabriela Candea (Ropardo) • Giorgia Codato (ISRAA) • Carina Dantas (Caritas Coimbra) • Francisco Flórez-Revuelta (Universidad de Alicante, Spain) • Javier Ganzarain (AGE Platform Europe) • Estelle Huchet (AGE Platform Europe) • Ana Jegundo (Caritas Coimbra) • Stefan Kamin (University of Erlangen-Nürnberg, Germany) • Nicolai Koblyakov (Senior Group, Paris) • Giorgos Kostopoulos (Gluk Advice BV, The Netherlands) • Juan Montalvá (UPM, Spain) • Oscar Zanutto (ISRAA) • Gottfried Zimmermann (Stuttgart Media University, Germany)

  12. @EIP_AHA

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