The Indianapolis Discovery Network in Dementia: The IDND Project June 12, 2006 Third IDND Meeting

1. IDND The Indianapolis Discovery Network in Dementia:The IDND ProjectJune 12, 2006Third IDND Meeting Malaz Boustani, MD, MPH Stephanie Munger, BS IUCAR, Regenstrief Institute, Inc.

2. Sponsorship IDND • Pfizer: • Facilitates creating environment for brainstorming by the IDND members. • No honorarium for any IDND members including Dr. Boustani • No restriction on the content of IDND

3. The IDND Rules IDND • No rules • Pro-Active listening • Pro-Active involvement • Regular meeting bimonthly or monthly • Sharing the minutes with all IDND members • Group feedback for any new idea • Self-organization

4. The IDND Frame-Work Changing Clinical & Research Environment Stress Other Local CASs Connection The IDND System Independent Scholar A Independent Scholar E Independent Scholar B Connection Connection Feedback Common goal Of IDND Independent Scholar D Independent Schoalr C Connection

5. The Complex Adaptive Systemof IDND • A number of independent diversified Scholars • Common and prioritized goal/goals (the IDND identity) • Local nonlinear dynamic interaction among these scholars • A supportive Matrix for IDND member interactions • Aligns IDND members’ interactions with the IDND goal via • Rich matrix • multiple dynamic positive feedback loops • No centralized control • Self-organization (distributed control) IDND

6. Evaluating the Impact of IDND • Attendance rates of the IDND meeting • # of projects generated by the IDND members: • Clinical • Research • Advocacy activities • # of publication generated by the IDND members • # of educational activities generated by the IDND members • Involvement of IDND members with state health policy and community outreach activities related to AD and dementia? IDND

7. Emergent Ideas From Last Meeting • 80% of IDND members attended the first meeting of 30 total members 53% attended the second meeting of 34 total members??% attended the third meeting, now with 39 members in total! • The IDND library resource for clinical and educational support (Website!) • IU Roybal may sponsor the website • Will be connected to ADEAR • Standardizing dementia screening and diagnosis work-up tool • Creating the software • No emerging next step • Create state-wide registry for research using the current Indiana-AA infrastructure • The CADRE project • Creating directory of IDND members • Via the Website • Members can develop their own ideas and workshop based on IDND interest • Spreading the word about IDND • AGS meeting • NIA • Pfizer • AA newsletter

8. Accomplishments Since Last Meeting • Publishing an Article about IDND with lN AA. • E-CHAMP summit was a success! • A paper in preparation for the benefit and harms of dementia screening. • Three Symposium were submitted to AGS and one to AAGP. • The Anticholinergic Burden scale • Donna’s Medicare database • Kaycee Database • ACE database • The emergence of the CADRE project. • Our Members directory is slowly advancing! Completion rate is 36%! (14 of 39 total members)

9. Announcement • E-CHAMP received the P&T approval • Next meeting? • ICAD July 2006 Madrid • Farlow, Hake, Hall, Hendrie, Gao, Callahan, Boustani. • Potential Projects: • Dementia Diagnosis Assistant software for primary care or memory clinicians. • Potential MSs: • Dementia in Primary Care: Screening, diagnosis, and Management. • Complex Adaptive System in Dementia Care. • IDND Initiatives • Delirium management. • Hospital Nurses Knowledge of Cognitive Impairment in hospitalized Older Adults. • Any additions?

10. Potential Discussion Topics For Today • The CADRE • --------- • -------- • --------