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The Renal Association UK Renal Registry Renal Registry dataset & plans for the dataset. Short term priorities including additional items to be collected. David Bull Terry Feest. The Renal Association UK Renal Registry The notes that are left over.
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The Renal Association UK Renal RegistryRenal Registry dataset & plans for the dataset.Short term priorities including additional items to be collected David Bull Terry Feest
The Renal Association UK Renal RegistryThe notes that are left over David Bull Terry Feest
Dataset plans • Review of minimum dataset • As James Medcalf is with the NRD • Will align the two • Reduce, start from what is analysed, add a few new areas • End result will be a smaller dataset.
Dataset plans • Paediatric data • Vascular accessPD data • Acute Kidney InjuryCKDConservative care • Drugs – date, name, frequency, dose route
Paediatric data • Ready to incorporate in to routine data transmission • Dataset is defined • Units have to liaise with you to ensure transmission
Vascular access and PD data • Spreadsheet exercises in place • Thus datasets defined • Need to incorporate into routine data collection
AKI in renal units • Wanted by commissioners • Dataset being defined • Short term • No.of dialyses • Comorbidities • Outcome diagnosis • CQUIN
AKI/CKD/Conservative care eGFR 25 What was last eGFR? Can system backfill? Is it new? Follow forward – does it recover? Sort into AKI, incident CKD, Prevalent CKD Will need appropriate flag Conservative care on timeline
RPV CQUIN • CQUIN 75% and 95% triggers • Registry will monitor • 20 pilot sites
AKI/CKD/Conservative care • Linked through need to sort/define • Section 251 being approached – • 5OK, • 4 new • Anonymise by NHS number scrambling
Moving into a new world • Together!